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Regarding the subject of pain....I like many others here, am in constant

pain. The pain is pretty localized to my joints and especially my feet. I am

trying to get into a pain clinic. My sister who started with this sucky disease

about 3 years before me just got some type of apparatus inserted in her back

which is supposed to aid in reducing the pain by blocking some of the messages

the nerves are sending to her brain. I have been on heavy duty narcotics for

a year ...and a half...I am conpletely functional on the narcotics and I get

only a little relief. At this point, my PCP says he doesn't have anything else

to offer me.

I have much difficulty walking...even though I have a crutch and a walker, I

tend to not use them because of stupid pride and because my kids are

embarassed by it. I see my Mito Doc in October and as of my last visit in

April, she

was concerned about the deterioration in walking I am having.

One more interesting note....I am 42 years old and in Menopause. I am

curious if any othe mito women entered menopause early. Of course I have every

single symptom to the 10th degree! I started working with a Nurse Practioner

who

has me on bioidentical hormones... right now it's just progesterone cream

made of wild yams from Mexico. It takes 2-3 months to find the right recipe for

you. I have had some relief in my joint pains too.

Carol

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Hi,

I entered menopause early,But only because I had my hysterectomy so young! They

still haven't figured out the right type of hormone med.I have been dealing with

symptoms for 6 years now.I do hope it ends soon (ha ha).

purplegromit@... wrote:

Regarding the subject of pain....I like many others here, am in constant

pain. The pain is pretty localized to my joints and especially my feet. I am

trying to get into a pain clinic. My sister who started with this sucky disease

about 3 years before me just got some type of apparatus inserted in her back

which is supposed to aid in reducing the pain by blocking some of the messages

the nerves are sending to her brain. I have been on heavy duty narcotics for

a year ...and a half...I am conpletely functional on the narcotics and I get

only a little relief. At this point, my PCP says he doesn't have anything else

to offer me.

I have much difficulty walking...even though I have a crutch and a walker, I

tend to not use them because of stupid pride and because my kids are

embarassed by it. I see my Mito Doc in October and as of my last visit in April,

she

was concerned about the deterioration in walking I am having.

One more interesting note....I am 42 years old and in Menopause. I am

curious if any othe mito women entered menopause early. Of course I have every

single symptom to the 10th degree! I started working with a Nurse Practioner who

has me on bioidentical hormones... right now it's just progesterone cream

made of wild yams from Mexico. It takes 2-3 months to find the right recipe for

you. I have had some relief in my joint pains too.

Carol

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Hi,

I entered menopause early,But only because I had my hysterectomy so young! They

still haven't figured out the right type of hormone med.I have been dealing with

symptoms for 6 years now.I do hope it ends soon (ha ha).

purplegromit@... wrote:

Regarding the subject of pain....I like many others here, am in constant

pain. The pain is pretty localized to my joints and especially my feet. I am

trying to get into a pain clinic. My sister who started with this sucky disease

about 3 years before me just got some type of apparatus inserted in her back

which is supposed to aid in reducing the pain by blocking some of the messages

the nerves are sending to her brain. I have been on heavy duty narcotics for

a year ...and a half...I am conpletely functional on the narcotics and I get

only a little relief. At this point, my PCP says he doesn't have anything else

to offer me.

I have much difficulty walking...even though I have a crutch and a walker, I

tend to not use them because of stupid pride and because my kids are

embarassed by it. I see my Mito Doc in October and as of my last visit in April,

she

was concerned about the deterioration in walking I am having.

One more interesting note....I am 42 years old and in Menopause. I am

curious if any othe mito women entered menopause early. Of course I have every

single symptom to the 10th degree! I started working with a Nurse Practioner who

has me on bioidentical hormones... right now it's just progesterone cream

made of wild yams from Mexico. It takes 2-3 months to find the right recipe for

you. I have had some relief in my joint pains too.

Carol

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  • 2 weeks later...

You should always check with a doc first before adding anything. I'm

not a doc and he may be taking something else that it could interfere

with. I just wanted to share my personal experience.

shedamerow wrote:

>Thanks. I'll add some to his pills tonight. Can't hurt and I'm

>thinking it may well be either muscle or a nerve pinched or miss firing.

>

>

>

>

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entirely responsible for its content. List members are reminded of their

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physicians regarding changes in their own treatment.

>

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automatically moderated or removed depending on the severity of the attack.

>

>

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