Re: Pain and Mito - Another Suggestion

August 28, 2004

This suggestion will only relieve the low back pain but if you can sleep with

your head elevated a little and with a pillow under your knees, it may help to

relieve the low back pain. Are you a back sleeper? If you are a side sleeper,

the pillow should go between your knees somewhat like pregnant mom's are told to

do. Boy have I learned the tricks. Hopefully, some of these suggestions will

work for you. When it's especially bad in my arms and hands, I actually put a

pillow under my arm (usually only one seems to be the problem at a time) and

this helps too.

I know you are putting some strain on yourself lifting and tending to

which probably makes your pain worse but can't be helped unless you can get some

kind of device to use for this. How much lifting do you need to do for him?

Alice

Hi Donna,

I've apparently missed a message from you regarding pain which in this message

seems to be escalating. You described every pain point I have which I can't

always ease. If I were you, I would start with Ibuprofin of some type (Motrin

or Aleve) and take them for a few days regularly even if the pain stops. See if

you notice some relief. There are other pain relievers that could work but pain

relievers can cause constipation so it's an avenue you'll need to experiment

with. If you need to take a little more than the regular dose - it may be worth

trying as it may be that you need something a little stronger. My

endocrinologist prescribed Vioxx because Dr Cohen recommended it. Now, there is

news that Vioxx seems to increase the incidence of heart attacks in it's users

so I'm glad I've never taken one a day as prescribed. I only take one when it's

an especially bad day. Has it been especially damp where you are or have you

been in air conditioning or around a lot of fans? This really gives me some

serious pain issues so I tend to try to lessen my time in those conditions and

living in New Mexico with heat intolerance isn't friendly to that idea. I

can't even tolerate the air conditioner on in the car or the window open and

blowing on me either.

It seems that those of is dealing with Mito are living with pain somewhere and

it's a difficult issue. Pain is not pleasant to endure day after day. I hope

you find some relief fast.

Alice

Thank you for your email that is what I thought also that it was a crash.

The pain was so bad last night I could barely walk I was crying if it keeps up I

will be calling my PCP for a referral to see a rheumatologist. The pain is in

the joints in my wrist, fingers, knees, ankles are really bad and my lower back.

I still have the muscle pain and stiffness and my constipation is getting worse

which I have had my whole entire life. I feel like this can't be happening as I

have to take care of my kids receives IV hyration once a month. Thanks

again and take care.

Donna

August 28, 2004

Hi Donna,

I didn't get a personal e mail from you. I suspect from reading this though

that you are experiencing all this pain due to the humidity and air conditioning

which is hard to live without even without this disease. Adding clothes never

helps me. I either have to get away from it or take pain relievers. Try the

pillow idea even if you have to roll blankets into a pillowcase to see if it

works. Good Luck! I know this is hard to live with. Your pain issues sound

identical to mine.

I'm glad your not lifting because it would make it worse.

Alice

Re: Pain and Mito - Another Suggestion

>

> This suggestion will only relieve the low back pain but if you can sleep

with your head elevated a little and with a pillow under your knees, it may help

to relieve the low back pain. Are you a back sleeper? If you are a side

sleeper, the pillow should go between your knees somewhat like pregnant mom's

are told to do. Boy have I learned the tricks. Hopefully, some of these

suggestions will work for you. When it's especially bad in my arms and hands, I

actually put a pillow under my arm (usually only one seems to be the problem at

a time) and this helps too.

> I know you are putting some strain on yourself lifting and tending to

which probably makes your pain worse but can't be helped unless you can

get some kind of device to use for this. How much lifting do you need to do for

him?

>

> Alice

>

> Hi Donna,

>

> I've apparently missed a message from you regarding pain which in this

message seems to be escalating. You described every pain point I have which I

can't always ease. If I were you, I would start with Ibuprofin of some type

(Motrin or Aleve) and take them for a few days regularly even if the pain stops.

See if you notice some relief. There are other pain relievers that could work

but pain relievers can cause constipation so it's an avenue you'll need to

experiment with. If you need to take a little more than the regular dose - it

may be worth trying as it may be that you need something a little stronger. My