Guest guest Posted March 29, 2004 Report Share Posted March 29, 2004 Hey Tricia, well it's nice to see you posting. Please feel free to " peek out " whenever you feel like it. Mojo Hi All! A Lurker is Peeking Out! > Hi all. I'm a lupus veteran who has occasionally read posts here and > thought I'd pull my head up of the sand (or fog, as we lupies are > sometimes known to be in!) and join in. I'm 34, divorced with no > kids and have been dx with sle for almost 16 years. I also have > fibro as well as completely destroyed ankle and wrist joints. Isn't > that avascular necrosis just a lovely parting gift from prednisone? > (my evil nemesis!!!) To the newly dx, make sure to take those > calcium and bone supplements. I was dx when I was 19 and didn't > fully understand how much my lack of understanding and taking care of > myself then would affect me now. My absolute main problems have been > major fatigue, joint problems and kidney problems. The kidneys > thankfully are doing much better, as I've been taking cyclosporine > for about 13 years now (no transplant). My dream is to someday be > able to go back to work but it's very difficult. I've tried three > times but my body just gets too worn down. Well, that's enough about > me and I can't wait to get to know all of you! > > Painfree days and nights full of sleep (huh? what's that?) to all of > you! > > Tricia > > > > > " The LUPIES Store " Come check out our store... > http://www.cafepress.com/thelupies > > " The LUPIES Web Page " > http://www.itzarion.com/lupusgroup.html > > " The LUPIES online photo albums! " > Check out what your fellow Lupies look like... > http://www.picturetrail.com/gallery/view?username=lupies > Quote Link to comment Share on other sites More sharing options...
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