Lynda Tonya

[Guest guest]

Lynda

DWs nuro has no clue, You need to fight for him, I know it stinks but that

is what I have had to do and now I am getting tired.

Duane Has a sun burn 4 inches up from his right knee and 4 inches down from

his knee, he was sitting in a chair and the sun moved and hit his leg I

warned him to move out of the sun but he got mad at me for telling him what

to do and he didn't move and got sun burnt, well now his leg is dark red and

turning purple in places and because he is diabetic I am taking him to the

Dr tomorrow @ 9 I have never seen a sun burn turn purple before.

Tonight he came out of the shower, I was just finishing a conversation on

the phone, he interrupted me wanting to talk about his leg, ( he does not

want to go to the DR when I was talking to the nurse he was yelling at me no

no no ) I asked him to wait a minuet until I got off and when I did he was

mad because he is not the center of attention at all times.

HE was not like this before it just started about 3 months ago.

I really miss him so much, my hubby was the sweetest kindest caring man I

had ever met, he would do any thing for any one, his heart is huge.

I just feel saturated in grief and loss most of the time, I think about you

,Tonya and all of the caregivers and pray of all of us daily.

I wish we could go back.

Love & Hugs

thanks for listening OR reading

Jan

Dewayne-long

> >

> >

> > > Hi to all,

> > > Email problems have kept me from getting lots of post....if I have

> ignored

> > individual messages, I will get to you I promise. I didn't realize I

had

> > problems because my only sister has just had 3 surprise bypasses on her

> > heart this past week. Didn't check my email and when I did.....none

came.

> > > Dewayne's breathing is getting worse and worse. We've had a very bad

> > month so far. We do go to the Drs tomorrow to follow up the sleep study

> and

> > then see his neuro. The methadone and the 4800 mg of Neurontin has

become

> > useless.....well I won't say useless....can't imagine what he'd be like

> > without the drugs. Unfortunately his mind is going so fast too. He is

> > making dangerous decisions and has no sense of judgment. His father

stays

> > with him while I'm working....I'm having to explain things to him just

as

> I

> > do our 6 year old son. I miss him so bad....I just want to talk with

him,

> > discuss our day, make future plans. Well we kinda did that

> > tonight....talked about the will and want to do with certain pieces of

> farm

> > equipment....not what I meant when I said the future.

> > > When I walked in from work this evening and saw how labored his

> breathing

> > was and how bad he looked, it hit me that this could be the beginning of

> the

> > end. I thought I was so strong and was ready for anything, but I guess

> I'm

> > not.....I reckon I've been kidding myself thinking everything is going

to

> > get better....guess I needed that false hope to keep myself halfway

sane.

> > > Well now, I didn't mean to go on and on....babbling like a broken

> record.

> > I know there are a lot out there worse than our situation. I think I am

> > exhausted and emotional about my sister too.

> > > Thanks though for letting me rant. I love all of you out there and

> just

> > pray that one day there will be a cure for this blasted thing of a

> disease.

> > > Love and prayers, Lynda R.

> > >

> > >

> > >