Re: Need a little input about a crisis..long post.

[Guest guest]

That's a beautiful picture.

Alice

Re: Need a little input about a crisis..long post.

In a message dated 8/23/2004 3:13:49 PM Eastern Standard Time,

justagram14@...justagram14@...> writes:

Is that you in the picture?

There is an organization that is fabulous for people on tube feeds and TPN

(I have probably listed it on here before).. _www.oley.org_

(http://www.oley.orghttp://www.oley.org/http://www.oley.orghttp://www.oley.or\

g/>>)

Hi Alice,

Yep...that's me about 4 yrs ago!

Malisa

[Guest guest]

Tks, Malissa. I agree with everything you say! What I always wish

for from my doctors is fair and balanced information. Sometimes I

get it, sometimes I don't. Thus the need to find other sources to

double check.

Take care,

Barbara

>

> In a message dated 8/22/2004 12:09:28 PM Eastern Standard Time,

> wheatchild@n... writes:

>

> His line was always, " With TPN you never know

> if you're going to wake up in the morning. You can throw a clot

in

> the night and die. " Another favorite line, " TPN kills, " always

> delivered with great authority. Granted he is opinionated and can

> lean to exaggeration at times, but given his international

> reputation and status as chair of dept at a large teaching

hospital,

> his warnings made us very wary.

>

>

> Hi Barbara,

> Yes....I am really lucky to have had a good experience with TPN.

When I

> first started on TPN, I had doctors who told me some of the same

things except

> they emphasized that my liver would be destroyed from it. They

were very

> reluctant to put me on TPN at first but eventually realized it was

necessary to

> keep me alive. Thankfully, I have done very well on it over the

years and my

> liver is extremely healthy.

>

> I do know of a few people who have gotten blood clots from central

lines,

> but none have died from them. Usually they are small enough that

they can be

> dissolved with clot busting agents. Getting a clot wouldn't be a

result of the

> TPN itself, but the central line that is needed for the TPN. The

risks of

> infection and liver damage from the TPN itself seem to be much

more prevalent

> than those from a clot unless someone has a history of a clotting

disorder.

>

> Your GI's statement of " TPN kills " made me laugh and roll my

eyes,

> especially after you said he can exaggerate sometimes. While

he's right, TPN isn't

> the first line of treatment for malnutrition, if someone needs

it, it can be

> lifesaving. I know so many success stories of people on long term

TP

> N....children who are now young adults who have lived on it since

birth....people who

> are in their forties who started on it in their early

twenties.....who are all

> thriving and living their lives and I really see it is a gift in

many

> circumstances. I talk to new moms of children who are starting on

TPN who are scared

> to death and I always tell them what a blessing it has been in my

life. It

> has given me the strength and ability to do all that I have

wanted to.

>

> So, while your GI is halfway right....TPN has risks that EVERY

person should

> consider....he should also be introduced to the many people who

are alive

> today b/c of the lifegiving gifts that TPN has to offer to those

who can't get

> nutrition in orally or through a tube.

> There is an organization that is fabulous for people on tube feeds

and TPN

> (I have probably listed it on here before).. _www.oley.org_

> (http://www.oley.org)

>

> I'm glad you and others know that there are risks and benefits to

everything

> and have the knowledge to weigh them before deciding on a

medication or

> treatment. Knowledge certainly is power!

> Malisa

>

>

>

>