Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 Dear , I tried Neurontin, from a neuro at Columbia-Pres. in NYC, about three years ago. Even thoough I went up gradually on the dosage, I could not tolerate this drug. It made me very sleepy and " spacey. " I stopped taking it. You mentioned that you were using it to help your sleep patterns. I have been using Elavil (amitriptyline) for peripheral neuropathy and to help with migraines since c. 1997. I take between 50-100 mgs. two hours before bedtime. It does make one very sleepy, and can cause weight gain, so I have been trying to get as much below 100 mg. as possible.. It has been extremely helpful for sleep. I don't want to scare you, but a repairman I had here at the house about two years ago started to cry in my kitchen. His beautiful fiancee (he showed me her picture) died from Neurontin. A doctor gave it to her for some mild depression, but started her at too large a dose. She stated to feel strange, and after only about a week on the med, told the doctor, who said not to worry. A few days after that, this man found her dead in the bathtub.. She had died of anaphylactic shock , from the Neurontin. Since so many of us must take so many different meds, given to us by very well-qualified neuros, it is easy to forget how potent these drugs are on our bodies. If I were you, I'd give the Elavil a try. It's been around a long time. I do know that the maker of Neurontin is in MUCH trouble with the FDA because their reps were pushing this drug for many off-label uses. Good luck! Sincerely, PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 yes, I know what yo mean. I do feel very confident in this doctor though. All of my doctors were aware of what he was going to try with the meds. So, they all know what I am taking with it. The more active I am, the less I am able to sleep. Seems absolutely crazy doesn't it? The opposite of what the " world " goes by that are normal. I will just wait and see what he wants to try next, there really aren't too many things left to try as I have done the gambit over the years. But,. seems like there has to be something! Until then, I am not taking either of the last 2 again. I will keep my " trips " to the traditional, I always enjoy those:) Smiles to you, Re: Neurontin > > I am a firm believer that sometimes the combination of medications we take can hinder our progress rather than help it. In this case, I wonder if you are on meds that the Neurontin reacted to. I do know that we can go thru the internet and find bad information about any drug. There are new suits brought up against drug companies every day. They are not all won. The media also has a way of putting out information on the hint of a potential issue. This is what makes them money. > > I think we have to pay close attention to what happens to us and be very careful because we are taking so much into our systems. I also think we need to be extremely mindful of our fluid intake as we certainly need to flush toxins from our organs. > > Alice > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 I agree with Alice that sometimes it can be the combinations of medications that we take that can cause effects. I am on Neurontin and it makes a world of difference for me. I was put on it for Restless leg syndrome, and tried to go off of it and onto Lamictal (was also going of Klonopin and the Lamictal was supposed to help both restless leg and myoclonus). The Lamictal did not help and my migraines increased when I tried to lower my Neurontin. For me, that is a lifesaver. I never had any side effects though. I hope that you can find something to help you ! Smiles, a On Wed, 18 Aug 2004 18:40:13 -0600 " A ADAMS " justagram14@...> writes: I am a firm believer that sometimes the combination of medications we take can hinder our progress rather than help it. In this case, I wonder if you are on meds that the Neurontin reacted to. I do know that we can go thru the internet and find bad information about any drug. There are new suits brought up against drug companies every day. They are not all won. The media also has a way of putting out information on the hint of a potential issue. This is what makes them money. I think we have to pay close attention to what happens to us and be very careful because we are taking so much into our systems. I also think we need to be extremely mindful of our fluid intake as we certainly need to flush toxins from our organs. Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 I have been reading all the posts about Neurontin and found it funny that some had a trip on it. Ten days after my ci surgery, which was 2002, I developed a severe headache and nothing would break it so the pharmacist suggested Neurontin as an off-label use. After 6 weeks my ENT relented and we tried it. I took 300mg 4 times a day and within 10 days I could not use my processor at all, everything was garbled and I was complaining...my daughter said I needed a new map so she made an appointment. By the time we were seen a week later I was barely functional, I looked at my toothbrush and didn't have a clue what to do with it! She was telling me to hurry up, and finish the make-up we needed to leave. She suggested it was NOT the map but my brain being slowed down so much I could not recognize the maps. Everyone agreed and I was tapered off and won't touch the stuff ever again. I was too doped up to even enjoy the trip! Debra Quote Link to comment Share on other sites More sharing options...
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