Re: update on jon

[Guest guest]

Hi Jon,

This really is good news to hear. A ray of hope is just like a rainbow!

I'll keep my fingers crossed for your continued stability and tx evaluation.

Roxanne, 58, South Carolina

2006 Asthma/ PF

2008 IPF/ Sarcoidosis/Gerd

Lady Slipper Orchid

>

> Subject: update on jon

> To: Breathe-Support

> Date: Saturday, August 16, 2008, 8:25 AM

> hello all,, just wanted to update everyone me and my latest

> dr.

> appt. with the hematologist..... we went wednesday.. and he

> said things

> are the same,, no change,,, things are stable and i have

> been stable if

> not slighty better over the past 4 months.. and in his

> opinion,, there

> is no reason why i cannot have a lung tx.. so that gave us

> a little

> ray of hope. i have had a couple really bad days of

> coughing,, so that

> has been rough.. but we are trying to hang in there and

> have an appt.

> with my pul.dr on tuesday.. then the tx. team in sept.

> sometime....

> hopefully we will hear a good report then. we were planning

> on driving

> to PA to visit my dad in sept..but with the tx.appt. we

> will not go

> now, just hope its a good visit. take care everyone. jon

> ipf 5-06

[Guest guest]

Jon

Thats great news. No way to still get the PA trip in just before or

after your TX appointment?

Stable remains the magic word.

>

> hello all,, just wanted to update everyone me and my latest dr.

> appt. with the hematologist..... we went wednesday.. and he said

things

> are the same,, no change,,, things are stable and i have been stable

if

> not slighty better over the past 4 months.. and in his opinion,, there

> is no reason why i cannot have a lung tx.. so that gave us a little

> ray of hope. i have had a couple really bad days of coughing,, so that

> has been rough.. but we are trying to hang in there and have an appt.

> with my pul.dr on tuesday.. then the tx. team in sept. sometime....

> hopefully we will hear a good report then. we were planning on driving

> to PA to visit my dad in sept..but with the tx.appt. we will not go

> now, just hope its a good visit. take care everyone. jon ipf 5-06

>