Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 Oh Jo, I do hope so desparately that can be of assistance to you and your horrific ordeal with you're knees, so you can get some info and help. Best Wishes. be thing of you! Thank you too Jon for the assistance you have given me! Sincerely, S. Re: Knee fusion/amputation - Hi , I'm Jo and I was indeed the person who wrote about the possibility of fusion or amputation of my left leg. I'm sorry that I haven't responded sooner, but I haven't been on my PC the past few days due to some other issues. I am completely blown away by your incredible thought and kindness in mentioning my situation and passing on so much information - I can't begin to thank you for that. Wow, I am really struggling to get my head around this! I am so glad that you have been able to save your leg through this procedure , it sounds like your knee was in a real state before this surgery. There are obviously a lot of differences in our personal situations, but reading through your story I see so many parallels too - even down to being told if your were a horse you'd be shot! My OS and I still joke about that now. Since that original post about the fusion/amputation I have been told the problems I have are in fact bilateral, which of course rules out fusion surgery. So I would be incredibly interested in talking to you more about Dr Masri and the whole procedure, as this may just lead to some hope for me. Even if it is a case of stabilising one leg enough to allow a fusion/amputation of the other. I am completely gob- smacked that he is so willing to discuss the procedure and interested in my situation, I'm sorry if I am rambling right now but I simply can't describe how I feel inside! Thank you so much , I will drop you a line offlist to talk in more detail about things and give you more info about my situation and position in the UK etc. I really can't begin to show my gratitude at what you have done. Take care....Jo x To learn more about EDS, visit our website: http://www.ceda.ca ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
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