Re: FDA-approved medication for RSD ??

[Guest guest]

My dr told me that every treatment and medication is considered experimental when it comes to RSD..nothing is FDA approved to cure, help or manage RSD.

Thanks for the response, Ginny. In fact, Neurontin and Avinza have been approved by the FDA for RSD. Unfortunately, neither of those work for the Big Sis (she is the one with RSD). The issue we have is that since neither of those work, we have to come up with something specifically approved by the FDA for RSD in order to get them on an indigent basis directly from the drug manufacturer.

One that she has been taking -- and that has done a wonderful job with the RSD -- is Keppra. Given her rathers, she would be content to take Keppra forever. Unfortunately, she is on SSDI/Medicare (which means no prescription coverage, really), and Keppra is very spendy. In checking with the manufacturer of Keppra, we found out that while the manufacturer does have an indigent program whereby they provide the drugs free of charge, unfortunately that would only work for her if she had been prescribed the Keppra because she is epileptic (which she is not). The FDA has approved Keppra for epilepsy.

IF she wanted to take Neurontin (which she totally does not!!), we could probably get it through the manufacturer on an indigent basis.

And that is why I go back to my original question of whether anyone knows of anything that has been specifically approved by the FDA for RSD. (I'm also researching it to see what I can come up with. I'll be sure to share the information when/if I find it.)

Hope everyone is doing well.

Hugs,

(aka the Little Sis)