Re: Home from the hospital after Pneumonia-

July 26, 2004

-this was my original post after I got home. I'm having increasing

muscle pain and fatigue now. I'm continuing to drink the 5 cans of Boost Plus

daily and have gained a pound. My intestines still aren't working any better

so that makes it hard to keep up with this volume of fluid. Thanks for

asking!

I'm home. Dr. Cohen came in yesterday morning(Thurs) and released me. I'm on

strictly a Boost plus diet of 5 cans daily.If I'm able to keep up with this

regiment I won't have to get the NJ tube. Dr. Cohen isn't concerned at all

about how much I weigh just that I'm nutritionally healthy. He said there are

mito patients who are below the threshold and they wither and die and so he is

trying to get me back above that threshold where I could do better again.

I'm just taking it one day at a time. Dr. Cohen really wants me at the UMDF

Conference so thats my focus right now. I've got 2 wks to get some strength.

We

had to wait until mid. afternoon to get a flight home as the Ped's resident

didn't come to sign the orders and write my scripts. I'm having alot of pain

and just in general really lethargic and worn out from everything. I can't

express how much your prayers, cards, phone calls, thoughts and gifts meant to

me. I couldn't have done it without all of your support.

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