Guest guest Posted July 23, 2004 Report Share Posted July 23, 2004 I am so glad you are home and look forward to seeing you at the conference. laurie > From: LILQT4U1984@... > Reply-To: > Date: Fri, 23 Jul 2004 07:32:24 EDT > To: Mito , , > tpnsupport , Moonchild62579@..., > allyson.l.sisler@..., Utbrn@..., bethb48@..., > PaddockSwim9098@..., @..., SheDeKold@..., > anne02@..., Traci1175@..., IMJANER2@..., Jillianw143@..., > Utahjo2@..., kodonnell2@..., kckoch76@..., > Lillian@..., Malilibear@..., davidm0508@..., > Marta608@..., thefourofus03@..., nikkinetgirl@..., > digby@..., sweetnana1@..., Wearingxblack@..., > roseschussler@..., Staceyje@..., laurice_stevens@..., > HiyaChica@..., LEMT13@..., SuCcubusx85@... > Subject: Re: is home > > I'm home. Dr. Cohen came in yesterday morning(Thurs) and released me. I'm on > strictly a Boost plus diet of 5 cans daily.If I'm able to keep up with this > regiment I won't have to get the NJ tube. Dr. Cohen isn't concerned at all > about how much I weigh just that I'm nutritionally healthy. He said there are > mito patients who are below the threshold and they wither and die and so he > is > trying to get me back above that threshold where I could do better again. > I'm just taking it one day at a time. Dr. Cohen really wants me at the UMDF > Conference so thats my focus right now. I've got 2 wks to get some strength. > We > had to wait until mid. afternoon to get a flight home as the Ped's resident > didn't come to sign the orders and write my scripts. I'm having alot of pain > and just in general really lethargic and worn out from everything. I can't > express how much your prayers, cards, phone calls, thoughts and gifts meant > to > me. I couldn't have done it without all of your support. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2004 Report Share Posted July 23, 2004 Welcom home ! Smiles to you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2004 Report Share Posted July 23, 2004 , I'm so glad to read this and hope that the Boost does what Dr Cohen is hoping it will do. At least it's a tasty way to try to get better. Wow... if you can make it to the conference, that would be great. I can't make it but I know there are a lot of people out there who will be there and would love to meet you. Get plenty of rest, drink that Boost and maybe you can actually go to Pittsburgh next month for something I know you would enjoy. Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2004 Report Share Posted July 23, 2004 Welcome home ! I am sorry that you had to go through so much. I know the whole hospitalization and all the tests had to have worn you out. Rest, rest, rest, now that you are home. Know that I am thinking of you and keeping you in my prayers. Smiles, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2004 Report Share Posted July 23, 2004 Glad you are home and can start to rest. Janet Sample Re: is home > I'm home. Dr. Cohen came in yesterday morning(Thurs) and released me. I'm on > strictly a Boost plus diet of 5 cans daily.If I'm able to keep up with this > regiment I won't have to get the NJ tube. Dr. Cohen isn't concerned at all > about how much I weigh just that I'm nutritionally healthy. He said there are > mito patients who are below the threshold and they wither and die and so he is > trying to get me back above that threshold where I could do better again. > I'm just taking it one day at a time. Dr. Cohen really wants me at the UMDF > Conference so thats my focus right now. I've got 2 wks to get some strength. We > had to wait until mid. afternoon to get a flight home as the Ped's resident > didn't come to sign the orders and write my scripts. I'm having alot of pain > and just in general really lethargic and worn out from everything. I can't > express how much your prayers, cards, phone calls, thoughts and gifts meant to > me. I couldn't have done it without all of your support. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2004 Report Share Posted July 23, 2004 Keep you chin up girlfriend! I hope the Boost gives you the boost you need and things start to improve for you. You sure deserve it!!! ;-) LILQT4U1984@... wrote: >I'm home. Dr. Cohen came in yesterday morning(Thurs) and released me. I'm on >strictly a Boost plus diet of 5 cans daily.If I'm able to keep up with this >regiment I won't have to get the NJ tube. Dr. Cohen isn't concerned at all >about how much I weigh just that I'm nutritionally healthy. He said there are >mito patients who are below the threshold and they wither and die and so he is >trying to get me back above that threshold where I could do better again. >I'm just taking it one day at a time. Dr. Cohen really wants me at the UMDF >Conference so thats my focus right now. I've got 2 wks to get some strength. We >had to wait until mid. afternoon to get a flight home as the Ped's resident >didn't come to sign the orders and write my scripts. I'm having alot of pain >and just in general really lethargic and worn out from everything. I can't >express how much your prayers, cards, phone calls, thoughts and gifts meant to >me. I couldn't have done it without all of your support. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 Hi , We've been so concerned about you....I tried to call the 216----number and didn't get an answer. I'll try and call you at home tomorrow. We went to Lexington over night for DW's sleep study. It was kinda comical.....They had him in a twin bed...he's 6'3 " . We'll get the results in a few weeks. PLEASE drink the Boost , just ask the Lord for His help in getting all that down and believe He will. We love you and your family. You are very special to all of us. Love and Prayers, Lynda R. Re: is home I'm home. Dr. Cohen came in yesterday morning(Thurs) and released me. I'm on strictly a Boost plus diet of 5 cans daily.If I'm able to keep up with this regiment I won't have to get the NJ tube. Dr. Cohen isn't concerned at all about how much I weigh just that I'm nutritionally healthy. He said there are mito patients who are below the threshold and they wither and die and so he is trying to get me back above that threshold where I could do better again. I'm just taking it one day at a time. Dr. Cohen really wants me at the UMDF Conference so thats my focus right now. I've got 2 wks to get some strength. We had to wait until mid. afternoon to get a flight home as the Ped's resident didn't come to sign the orders and write my scripts. I'm having alot of pain and just in general really lethargic and worn out from everything. I can't express how much your prayers, cards, phone calls, thoughts and gifts meant to me. I couldn't have done it without all of your support. Quote Link to comment Share on other sites More sharing options...
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