Dr Byers called my GP

[Guest guest]

So, I saw my GP on Friday. Dr Byers had called her. She was pretty excited

about that. I guess he's a pretty " big " guy.

Anyway, he told her that I have EDS hypermobile type, and that I should be doing

" hardening " excercises.

So, she called my PT and asked them if they do that, which they said " yes " .

So, now it looks like I'm gonna have to do light weight excercises. I tried to

tell Dr Byers that I don't think I should, or can. That's what put me in this

mess to begin with. But, then I was lifting heavy weights. I told him that it

hurts, but he didn't listen to that. Just said to do very light weights.

Anyway, I hear so much about NOT doing any weight excercises. Even my PT told

me not to do them.

So, I don't know where I'm at now. Should I try it? What do you all think?

[Guest guest]

> Anyway, I hear so much about NOT doing any weight exercises. Even my PT

told me not to do them.

Super light weights with more repetitions is OK for SOME people with HEDS.

If you can't handle the resistance, try working isometric.

Water aerobics is also very good for many people with EDS.

-Barb

[Guest guest]

Hi,

He also does biopsies from other countries. I think he is one of the

top genetecists on EDS in the whole world, not only the US...

Biopsies taken here in Norway normally goes to Germany, but I know

some are sent to the US as well...

Aase Marit

>

> I'm sure others can elaberate further since I have never seen

>Byers, but he is in Washington State. He has the lab that all the

>skin biopsies in the US are sent to, (all biopsies except the ones

>taken at NIH) He is a genetisist. He is interested in type 4. From

>what I have heard, he is one of the top genectics in EDS in the US.

>I'm sure others could tell you more. Cindy C.