Home from MDA CAmp and Totally Thrilled!!!!!

[Guest guest]

Hi Guys,

As usual, I had a tough time allowing the kids to do the camp thing, but

after seeing those faces of pure utter joy come running off that bus when they

returned and a 21/2 hour drive home from the MDA office where they hardly took a

breath telling us all about their adventures, I am soooooo grateful to Dr.

Boles and his staff and all of you for the encouragement to let them go!!!!! I

will be able to enjoy the time next year for sure I think. Hey if there are

any moms out there who are still debating this, don't!!!! Let them go!!!!!! My

three kids had the absolute time of their lives! You will struggle this

first time, but I totally recommend it and besides the group was right here for

me

to hold my hand through it all and will be here for you! They the MDA staff,

were more than prepared to meet their needs, I sent half of my cupboards to

insure that they ate every 2-3 hours and they came back with most of it because

the camp was so well stocked and prepared to meet their needs. said

Mom every time I turned around someone was making sure I had eaten or went to

take my meds or took my nap, my counselor liked that part about me he said,

LOL. Even my little 8 year old who cried when I dropped her off, has yet to

stop

talking about her camp experiences. They can't wait to leave for Camp Dream

Street next week! I am sure it will be hard still since it is the first time

at this camp as well, but I was more than impressed with MDA and their

organization and just the whole thing. The camp was staffed with Marines and

Navy

personnel and has yet to stop talking about the Camouflage Hunt they had

out in the field. The military personnel dressed in their fatigues and hid in

the field grass and the kids had to go out and find them without getting

captured and becoming a POW. did the hunt partly in his wheel chair

because

he got tired. just thought it was so cool!!!!LOL Of course the pool

was a huge hit as well, and the craft room, I am sporting 3 very cool camp made

candles in my living room at the minute! LOL

Thanks to all who have been my support through the first time camp Mom

experience! But like everyone has said, MDA camp was the best for the kids and

they

didn't freak when I couldn't stand it and called! LOL All this to say to

those still on the fence, LET THEM GO! The kids loved it! Mine are 14, 11, and

8 years old.

We are all looking forward to going to DREAM STREET in just a week here.

HUGS!

O and crew - Kira,, and Krisalynn Mitochondrial Myopathy-MIDS

Maternally Inherited Dysautonomia- NVD ( Nuro Vascular Dystrophy) and dad

Enrique

Visit our web page: WWW. caringbridge.org/ca/mitooggo

Help support my sister in her new business at : Come and see what's NEW!

http://www.youravon.com/elleenmiller Your AVON representative (Sign in

passcode: ElleensAVON if you are signing in for the first time :-)

[Guest guest]

Hey ,

You've got me wanting to go to camp.....quit making it sound so fun:) I am so

glad you let all of the kids go...I prayed for you those first few

days....imagine it was so hard to let go. Anyway have lots of fun at the next

one.

Love, Lynda R.

Home from MDA CAmp and Totally Thrilled!!!!!

Hi Guys,

As usual, I had a tough time allowing the kids to do the camp thing, but

after seeing those faces of pure utter joy come running off that bus when they

returned and a 21/2 hour drive home from the MDA office where they hardly took

a

breath telling us all about their adventures, I am soooooo grateful to Dr.

Boles and his staff and all of you for the encouragement to let them go!!!!!

I

will be able to enjoy the time next year for sure I think. Hey if there are

any moms out there who are still debating this, don't!!!! Let them go!!!!!!

My

three kids had the absolute time of their lives! You will struggle this

first time, but I totally recommend it and besides the group was right here

for me

to hold my hand through it all and will be here for you! They the MDA staff,

were more than prepared to meet their needs, I sent half of my cupboards to

insure that they ate every 2-3 hours and they came back with most of it

because

the camp was so well stocked and prepared to meet their needs. said

Mom every time I turned around someone was making sure I had eaten or went to

take my meds or took my nap, my counselor liked that part about me he said,

LOL. Even my little 8 year old who cried when I dropped her off, has yet to

stop

talking about her camp experiences. They can't wait to leave for Camp Dream

Street next week! I am sure it will be hard still since it is the first time

at this camp as well, but I was more than impressed with MDA and their

organization and just the whole thing. The camp was staffed with Marines and

Navy

personnel and has yet to stop talking about the Camouflage Hunt they

had

out in the field. The military personnel dressed in their fatigues and hid in

the field grass and the kids had to go out and find them without getting

captured and becoming a POW. did the hunt partly in his wheel chair

because

he got tired. just thought it was so cool!!!!LOL Of course the pool

was a huge hit as well, and the craft room, I am sporting 3 very cool camp

made

candles in my living room at the minute! LOL

Thanks to all who have been my support through the first time camp Mom

experience! But like everyone has said, MDA camp was the best for the kids

and they

didn't freak when I couldn't stand it and called! LOL All this to say to

those still on the fence, LET THEM GO! The kids loved it! Mine are 14, 11,

and

8 years old.

We are all looking forward to going to DREAM STREET in just a week here.

HUGS!

O and crew - Kira,, and Krisalynn Mitochondrial Myopathy-MIDS

Maternally Inherited Dysautonomia- NVD ( Nuro Vascular Dystrophy) and dad

Enrique

Visit our web page: WWW. caringbridge.org/ca/mitooggo

Help support my sister in her new business at : Come and see what's NEW!

http://www.youravon.com/elleenmiller Your AVON representative (Sign in

passcode: ElleensAVON if you are signing in for the first time :-)

[Guest guest]

,

You have just written a report on MDA camp that echoes everything I've read from

other parents after their children with Mito spent a week away enjoying the fun

of being just like everyone else. That's what MDA camp is all about and it is a

wonderful benefit for the kids but also a very good rest time for the parents

who with love, great personal sacrifices and a lot of heartbreak and stress live

with this chronic disease 24/7.

I'm so glad they had a great time but didn't expect otherwise. You'll have to

tell us about Ca Dream Street too.

Alice

Thanks to all who have been my support through the first time camp Mom

experience! But like everyone has said, MDA camp was the best for the kids

and they

didn't freak when I couldn't stand it and called! LOL All this to say to

those still on the fence, LET THEM GO! The kids loved it! Mine are 14, 11,

and

8 years old. We are all looking forward to going to DREAM STREET in just a

week here.

[Guest guest]

In a message dated 7/20/2004 3:49:55 AM Eastern Standard Time,

mitooggo@... writes:

My

three kids had the absolute time of their lives!

,

YAY!!! I am SO glad they had a good time!!!!!! I'm sure they will look

forward to the next MDA camp all year long!

Malisa