Re: Not a good time to crash...

July 19, 2004

I know it is more expensive, but and I plan to get to the hotel a day

before and stay a day after the conference and we rest those days, not

explore the area, and that seems to help. That is what we did in Dallas. I

was tired, but not crashy.

I hope you get over the grud.

laurie

>

> Reply-To:

> Date: Mon, 19 Jul 2004 13:53:01 -0000

> To:

> Subject: Not a good time to crash...

>

> Hello Friends,

>

> 's Law has been activated here in Melbourne Florida once

> again!!! With the Conference just a few weeeks away I am heading for

> a crash........in reality I probably am responsible for some of it

> Last week I subbed at my daughter's daycare and was around 6 one to

> two yr olds; who of cours had the usual kids colds and germs. I only

> subbed because it helped off set Kailanne's tuition and we all know

> how financial resources can be tight when you have 3 people on the

> coctail and need a gazillion meds monthly. I probably should have

> thought it thru a bit more, but what's done is done, right? I am

> suffering with extreme fatigue and now have symptoms of a Resp

> Infection. In addition, I have a bad back due to muscle strength

> probs so lifting all the babies all week long caused the spasms to

> return. I was in PT for about 4 months and it seemed to really help,

> but the Good Ole Insurance maxed out and they are denying any

> additional therapy. I have an appt set for tomorrow with my PCP to

> hopefully get the Resp Problem dealt with so I don't go into

> disteress and need a steriod boost. My Doc is a DO so he will also

> preform a manipulation to help my back.

>

> All in all I plan to rest as much as possible before the Conference

> so I can avoid a major crash. When I left Dallas 2 yrs ago I went

> right into a crash that lasted a few months. This time I plan to be

> smarter and bring my cane to use so when I start to feel the

> slightest bit fatigues I will be prepared. It seems that traveling

> always does me in and sets off a chain reaction. Does this happen to

> anyone else? I am not sure if any of you remember but by the time

> Koch and I headed for the airport, from Dallas, I was

> barely able to stand. Let's all say a Prayer that I do better this

> time around.

>

> Take Care and thanks for being there when I need all of you. It is so

> great to have all of you out in cyber space to reach out to when I am

> having a pity party or just need some support.

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

July 19, 2004

Laurie,

Thanks for taking the time to write and let me know what your plans

are for the COnference. I am planning to arrive on Thursday in the am

so I can get a few hours of rest in before chaos strikes :-) I wil

be traveling with my best friend, . She has a 2 yr old little

girl with a Mito Disorder. Shelby has been diagnosed wiht a

Complex I-V Deficiency. This will be 's first Conference and I

am sure she will enjoy meeting all of you and sharing the experience

of such an amazing opportunity to hear all the renoun Mito Docs speak

on such important topics.

BTW. are we all planning to meet the night before for dinner or to

socialize like we did at the food court in Dallas? I hope we all

geta chance to catch up and spend some time together.

>

> I know it is more expensive, but and I plan to get to the

hotel a day

> before and stay a day after the conference and we rest those days,

not

> explore the area, and that seems to help. That is what we did in

Dallas. I

> was tired, but not crashy.

>

> I hope you get over the grud.

>

> laurie

>

> > From: " mitomomtoo "

> > Reply-To:

> > Date: Mon, 19 Jul 2004 13:53:01 -0000

> > To:

> > Subject: Not a good time to crash...

> >

> > Hello Friends,

> >

> > 's Law has been activated here in Melbourne Florida once

> > again!!! With the Conference just a few weeeks away I am heading

for

> > a crash........in reality I probably am responsible for some of

it

> > Last week I subbed at my daughter's daycare and was around 6 one

to

> > two yr olds; who of cours had the usual kids colds and germs. I

only

> > subbed because it helped off set Kailanne's tuition and we all

know

> > how financial resources can be tight when you have 3 people on the

> > coctail and need a gazillion meds monthly. I probably should have

> > thought it thru a bit more, but what's done is done, right? I am

> > suffering with extreme fatigue and now have symptoms of a Resp

> > Infection. In addition, I have a bad back due to muscle strength

> > probs so lifting all the babies all week long caused the spasms to

> > return. I was in PT for about 4 months and it seemed to really

help,

> > but the Good Ole Insurance maxed out and they are denying any

> > additional therapy. I have an appt set for tomorrow with my PCP

to

> > hopefully get the Resp Problem dealt with so I don't go into

> > disteress and need a steriod boost. My Doc is a DO so he will also

> > preform a manipulation to help my back.

> >

> > All in all I plan to rest as much as possible before the

Conference

> > so I can avoid a major crash. When I left Dallas 2 yrs ago I went

> > right into a crash that lasted a few months. This time I plan to

be

> > smarter and bring my cane to use so when I start to feel the

> > slightest bit fatigues I will be prepared. It seems that traveling

> > always does me in and sets off a chain reaction. Does this happen

to

> > anyone else? I am not sure if any of you remember but by the time

> > Koch and I headed for the airport, from Dallas, I was

> > barely able to stand. Let's all say a Prayer that I do better this

> > time around.

> >

> > Take Care and thanks for being there when I need all of you. It

is so

> > great to have all of you out in cyber space to reach out to when

I am

> > having a pity party or just need some support.

> >

> > Medical advice, information, opinions, data and statements

contained herein

> > are not necessarily those of the list moderators. The author of

this e mail is

> > entirely responsible for its content. List members are reminded

of their

> > responsibility to evaluate the content of the postings and

consult with their

> > physicians regarding changes in their own treatment.

> >

> > Personal attacks are not permitted on the list and anyone who

sends one is

> > automatically moderated or removed depending on the severity of

the attack.

> >

July 19, 2004

It certainly would be nice to meet. How about those who arrive early check

out what is available and post a sign on the " " table as to place

and time. They are also going to set up rooms for on-line groups to go to to

meet others. I think that will be fun.

laurie

>

> Reply-To:

> Date: Mon, 19 Jul 2004 14:58:59 -0000

> To:

> Subject: Re: Not a good time to crash...

>

> Laurie,

> Thanks for taking the time to write and let me know what your plans

> are for the COnference. I am planning to arrive on Thursday in the am

> so I can get a few hours of rest in before chaos strikes :-) I wil

> be traveling with my best friend, . She has a 2 yr old little

> girl with a Mito Disorder. Shelby has been diagnosed wiht a

> Complex I-V Deficiency. This will be 's first Conference and I

> am sure she will enjoy meeting all of you and sharing the experience

> of such an amazing opportunity to hear all the renoun Mito Docs speak

> on such important topics.

>

> BTW. are we all planning to meet the night before for dinner or to

> socialize like we did at the food court in Dallas? I hope we all

> geta chance to catch up and spend some time together.

>

>>

>> I know it is more expensive, but and I plan to get to the

> hotel a day

>> before and stay a day after the conference and we rest those days,

> not

>> explore the area, and that seems to help. That is what we did in

> Dallas. I

>> was tired, but not crashy.

>>

>> I hope you get over the grud.

>>

>> laurie

>>

>>> From: " mitomomtoo "

>>> Reply-To:

>>> Date: Mon, 19 Jul 2004 13:53:01 -0000

>>> To:

>>> Subject: Not a good time to crash...

>>>

>>> Hello Friends,

>>>

>>> 's Law has been activated here in Melbourne Florida once

>>> again!!! With the Conference just a few weeeks away I am heading

> for

>>> a crash........in reality I probably am responsible for some of

> it

>>> Last week I subbed at my daughter's daycare and was around 6 one

> to

>>> two yr olds; who of cours had the usual kids colds and germs. I

> only

>>> subbed because it helped off set Kailanne's tuition and we all

> know

>>> how financial resources can be tight when you have 3 people on the

>>> coctail and need a gazillion meds monthly. I probably should have

>>> thought it thru a bit more, but what's done is done, right? I am

>>> suffering with extreme fatigue and now have symptoms of a Resp

>>> Infection. In addition, I have a bad back due to muscle strength

>>> probs so lifting all the babies all week long caused the spasms to

>>> return. I was in PT for about 4 months and it seemed to really

> help,

>>> but the Good Ole Insurance maxed out and they are denying any

>>> additional therapy. I have an appt set for tomorrow with my PCP

> to

>>> hopefully get the Resp Problem dealt with so I don't go into

>>> disteress and need a steriod boost. My Doc is a DO so he will also

>>> preform a manipulation to help my back.

>>>

>>> All in all I plan to rest as much as possible before the

> Conference

>>> so I can avoid a major crash. When I left Dallas 2 yrs ago I went

>>> right into a crash that lasted a few months. This time I plan to

> be

>>> smarter and bring my cane to use so when I start to feel the

>>> slightest bit fatigues I will be prepared. It seems that traveling

>>> always does me in and sets off a chain reaction. Does this happen

> to

>>> anyone else? I am not sure if any of you remember but by the time

>>> Koch and I headed for the airport, from Dallas, I was

>>> barely able to stand. Let's all say a Prayer that I do better this

>>> time around.

>>>

>>> Take Care and thanks for being there when I need all of you. It

> is so

>>> great to have all of you out in cyber space to reach out to when

> I am

>>> having a pity party or just need some support.

>>>

>>> Medical advice, information, opinions, data and statements

> contained herein

>>> are not necessarily those of the list moderators. The author of

> this e mail is

>>> entirely responsible for its content. List members are reminded

> of their

>>> responsibility to evaluate the content of the postings and

> consult with their

>>> physicians regarding changes in their own treatment.

>>>

>>> Personal attacks are not permitted on the list and anyone who

> sends one is

>>> automatically moderated or removed depending on the severity of

> the attack.

>>>

July 19, 2004

Laurie sounds great to me!!! Lets' see what we can put together!

I'll check the link to the Westin----I know there are a listing of

local resturatnts on the website. I'll check it out and post

something later today.

> >>

> >> I know it is more expensive, but and I plan to get to the

> > hotel a day

> >> before and stay a day after the conference and we rest those

days,

> > not

> >> explore the area, and that seems to help. That is what we did in

> > Dallas. I

> >> was tired, but not crashy.

> >>

> >> I hope you get over the grud.

> >>

> >> laurie

> >>

> >>> From: " mitomomtoo "

> >>> Reply-To:

> >>> Date: Mon, 19 Jul 2004 13:53:01 -0000

> >>> To:

> >>> Subject: Not a good time to crash...

> >>>

> >>> Hello Friends,

> >>>

> >>> 's Law has been activated here in Melbourne Florida once

> >>> again!!! With the Conference just a few weeeks away I am

heading

> > for

> >>> a crash........in reality I probably am responsible for some of

> > it

> >>> Last week I subbed at my daughter's daycare and was around 6 one

> > to

> >>> two yr olds; who of cours had the usual kids colds and germs. I

> > only

> >>> subbed because it helped off set Kailanne's tuition and we all

> > know

> >>> how financial resources can be tight when you have 3 people on

the

> >>> coctail and need a gazillion meds monthly. I probably should

have

> >>> thought it thru a bit more, but what's done is done, right? I

am

> >>> suffering with extreme fatigue and now have symptoms of a Resp

> >>> Infection. In addition, I have a bad back due to muscle

strength

> >>> probs so lifting all the babies all week long caused the spasms

to

> >>> return. I was in PT for about 4 months and it seemed to really

> > help,

> >>> but the Good Ole Insurance maxed out and they are denying any

> >>> additional therapy. I have an appt set for tomorrow with my PCP

> > to

> >>> hopefully get the Resp Problem dealt with so I don't go into

> >>> disteress and need a steriod boost. My Doc is a DO so he will

also

> >>> preform a manipulation to help my back.

> >>>

> >>> All in all I plan to rest as much as possible before the

> > Conference

> >>> so I can avoid a major crash. When I left Dallas 2 yrs ago I

went

> >>> right into a crash that lasted a few months. This time I plan to

> > be

> >>> smarter and bring my cane to use so when I start to feel the

> >>> slightest bit fatigues I will be prepared. It seems that

traveling

> >>> always does me in and sets off a chain reaction. Does this

happen

> > to

> >>> anyone else? I am not sure if any of you remember but by the

time

> >>> Koch and I headed for the airport, from Dallas, I was

> >>> barely able to stand. Let's all say a Prayer that I do better

this

> >>> time around.

> >>>

> >>> Take Care and thanks for being there when I need all of you. It

> > is so

> >>> great to have all of you out in cyber space to reach out to when

> > I am

> >>> having a pity party or just need some support.

> >>>

> >>> Medical advice, information, opinions, data and statements

> > contained herein

> >>> are not necessarily those of the list moderators. The author of

> > this e mail is

> >>> entirely responsible for its content. List members are reminded

> > of their

> >>> responsibility to evaluate the content of the postings and

> > consult with their

> >>> physicians regarding changes in their own treatment.

> >>>

> >>> Personal attacks are not permitted on the list and anyone who

> > sends one is

> >>> automatically moderated or removed depending on the severity of

> > the attack.

> >>>

July 19, 2004

,

Hi! I hope you start feeling better soon. I want you at your

best for the conference, as I know traveling wears you out and sends you

into a crash. I remember being at the airport together in Dallas! Yes,

do bring your cane this time and " comfortable pair' of shoes! I still

don't know if I am going to be able to attend the conference or not. I

hope to see you if I do go, if I am not able to make it, my spirit will

be with you!

Smiles,

a

On Mon, 19 Jul 2004 13:53:01 -0000 " mitomomtoo " mitomomtoo@...>

writes:

Hello Friends,

's Law has been activated here in Melbourne Florida once

again!!! With the Conference just a few weeeks away I am heading for

a crash........in reality I probably am responsible for some of it

Last week I subbed at my daughter's daycare and was around 6 one to

two yr olds; who of cours had the usual kids colds and germs. I only

subbed because it helped off set Kailanne's tuition and we all know

how financial resources can be tight when you have 3 people on the

coctail and need a gazillion meds monthly. I probably should have

thought it thru a bit more, but what's done is done, right? I am

suffering with extreme fatigue and now have symptoms of a Resp

Infection. In addition, I have a bad back due to muscle strength

probs so lifting all the babies all week long caused the spasms to

return. I was in PT for about 4 months and it seemed to really help,

but the Good Ole Insurance maxed out and they are denying any

additional therapy. I have an appt set for tomorrow with my PCP to

hopefully get the Resp Problem dealt with so I don't go into

disteress and need a steriod boost. My Doc is a DO so he will also

preform a manipulation to help my back.

All in all I plan to rest as much as possible before the Conference

so I can avoid a major crash. When I left Dallas 2 yrs ago I went

right into a crash that lasted a few months. This time I plan to be

smarter and bring my cane to use so when I start to feel the

slightest bit fatigues I will be prepared. It seems that traveling

always does me in and sets off a chain reaction. Does this happen to

anyone else? I am not sure if any of you remember but by the time

Koch and I headed for the airport, from Dallas, I was

barely able to stand. Let's all say a Prayer that I do better this

time around.

Take Care and thanks for being there when I need all of you. It is so

great to have all of you out in cyber space to reach out to when I am

having a pity party or just need some support.

July 19, 2004

,

I hope you don't crash!! I have the same plans you have as far as taking things

easy and not overdoing it for the next 2 weeks, but I know something will happen

to make that impossible.

I hope your Doctor helps you and makes your back feel better.

Looking forward to meeting you.

Hugs,

Ann-Marie

Not a good time to crash...