Alice's Results with NT Factor

[Guest guest]

wow Alice, this is great news. I have followed your posts describing your

fatigue and on going problems for the last few months, and am so happy to hear

that you are finally getting some relief, and have more energy.

I have been in a major crash since Oct.2003. Someone might ask How can that be?

Well, I have never been in a crash that long, but it is possible, and I did it,

and I am still in it. I have been sleeping for 18 to 20 hours a day. Getting up

once and trying to eat a little something, and back to bed. Sometimes I can

check my email and other times not. I went to my Doctors appts. and nothing they

recommended worked or even slighly helped. Some didn't have any recommendations

at all. I lost over 20 lbs in 7 months, there was talk about a gtube, but MDA

Doctor says lets wait, until when? I am now down to 80lbs

I have always been a good eater, and yes it was hard to maintain

my weight of 105lbs. but I did so.

I remember you sending that post to the list, but really didn't give it much

thought and deleted it. Could you please send the list the website or the

information you have on it, I would like to review it and decide for myself if

it would be a good thing for me.

And yes, I understand that we shouldn't be taking things without our docs advice

or knowledge, but at times we have to take the *Bull by the Horns* and take care

of ourselves when our docs seem to be stuck as to what to do next for us.

I can't believe you were able to do that much work today and in that kind of

heat. Now when you do this kind of work will you normally go into a crash in a

fews days? Have you done this kind of work like you did today since you have

been on the NT Factor and crashed a few days later?

I know that different products don't work the same for all of us, and I will

certainly take that into consideration when I make my decision, and I hope

everyone else who decides to try this also realises that it will be different

with each and every one of us.

Thank you for your very informative post and I am so glad that you have found

something that is helping you to enjoy life again.!! :-)

Ann-Marie

Re: reaction to COQ10

RH brought up NADH. I have not tried this but I am taking NT Factor which was

not recommended by any physician but introduced to me thru a private message to

me as listowner of Mitoldies. I have been on it 4 weeks now and the results are

amazing. I have found that I have more energy and endurance than I have had in

a very long time. You all know how sick I was and when I received the owner

message about NT Factor, I was very skeptical but out of desperation, I decided

to try it. I can't even begin to tell you what a difference it has made for me.

I have told others, including family members about this product and they have

tried it. Out of 7 people who are now taking it, 5 are all sharing my very

surprising results. One of the two who didn't share my results had an increase

of Mito symptoms and the other had a problem with heart racing. This just goes

to show how we are so different and what one of us can take can work wonders

while others have a totally different reaction. I cannot take the CoQ made by

Tischon. If it ever gets approved as a drug, I still won't be able to take it.

I can't take straight Niacin. It's a very serious problem for me. But I can

sure take NT Factor and I intend to continue to do so, even without the doctor's

approval. It has made my life much easier to live, given me the ability to cope

with what I cannot change and has me out of the recliner and up and about doing

things I haven't been able to do for months. Today, I cut shrubs, cleared them

and bagged the results of my work to go to the dump. I can't believe I could do

this in 90 degree heat but I did, came in and drank water and then came to the

computer which is something else I had just about given up.

This is not an advertisement for the product. I just felt I needed to share

this with the group since we are on the subject of different methods of

combating the effects of the disease so that life is more livable. There is no

cure so finding something that helps is about all we can do.

I am not recommending that anyone else do what I have done. It really isn't a

good idea to take something without the doctor's recommendation but for me, I'd

gone months to so many appointments and nothing they recommended was helping.

Suddenly, after taking a chance, this is making a huge difference in my life and

some others that I know and the change is noticeable within 48 hours.

Alice

> ,

> I would stop the CoQ10 and ask your doctor about it. Not

> everyone can take CoQ10. I have problems with that and Carnitor.

> They

> seem to make me worse.

Yes, both CoQ10 and Carnitor make me worse as well. NADH works well

for me.

Take care,

RH

[Guest guest]

> And yes, I understand that we shouldn't be taking things without

> our docs advice or knowledge, but at times we have to take the

>*Bull by the Horns* and take care of ourselves when our docs seem to

> be stuck as to what to do next for us.

NADH is on the mito cocktail list, and my MDA clinic doctor, who

knows a good bit about mito disorders, says " try things on the mito

cocktail list, if it works, use it. If it doesn't, try something

else. " So NADH was something I wanted to try, after taking CoQ10 and

carnitine (and Carnitor), and not having any luck.

So I did have clearance to try anything on the mito cocktail list.

BUT, the big problem is that the supplement industry is not

standardized, so as you can see on our discussions about CoQ10, QGel,

Carnitor, carnitine, etc., what you see may not be what you get, or

if I try NADH, and it works, it may not work for you if, say, you run

and get the CVS brand of NADH. So, although I hate mentioning brand

names, it seems that often it is necessary to be clear and consistent.

Take care,

RH

[Guest guest]

Yes.. I asked Dr Cohen about NAHD and he said that Dr Shoffner is recommending

it but Dr Cohen admitted that he didn't know anything about it. He said to go

ahead and try it if I wanted to. I looked it up and what I found was a high

concentration of Niacin which is a huge No No for me so I turned away from

trying it. NT has niacin too but not much and it hasn't seemed to bother me - at

least not yet.

I am sure that what will work for some won't work for others. I'm glad that

some are finding that NAHD is helpful to them.

Alice

Re: Alice's Results with NT Factor

> And yes, I understand that we shouldn't be taking things without

> our docs advice or knowledge, but at times we have to take the

>*Bull by the Horns* and take care of ourselves when our docs seem to

> be stuck as to what to do next for us.

NADH is on the mito cocktail list, and my MDA clinic doctor, who

knows a good bit about mito disorders, says " try things on the mito

cocktail list, if it works, use it. If it doesn't, try something

else. " So NADH was something I wanted to try, after taking CoQ10 and

carnitine (and Carnitor), and not having any luck.

So I did have clearance to try anything on the mito cocktail list.

BUT, the big problem is that the supplement industry is not

standardized, so as you can see on our discussions about CoQ10, QGel,

Carnitor, carnitine, etc., what you see may not be what you get, or

if I try NADH, and it works, it may not work for you if, say, you run

and get the CVS brand of NADH. So, although I hate mentioning brand

names, it seems that often it is necessary to be clear and consistent.

Take care,

RH

[Guest guest]

I'm pretty sure it is not the same as niacin, but related. It is

only one compound:

nicotinamide adenine dinucleotide

Niacin is Vitamin B3, nicotinic acid. Although the names sound

similar, they are different enough that the body handles them

differently. I know that ENADAlert NADH only has NADH in it, no

niacin. Perhaps you were looking at a different NADH formulation

that has niacin in it?

This link discusses NADH and CFS:

http://64.233.161.104/search?q=cache:-

yyUHBqsqpQJ:www.vorsoft.com/medical/niacin/cfs.htm+niacin+nadh&hl=en&c

lient=REAL-tb

What it seems is that niacin *should* go towards making NADH, but

some people can't take niacin. So taking NADH should " cut out the

middle man " . Niacin gives me side effects too, and gave my dad

really bad skin.

My understanding of one of the NT factor cons is that it is contained

in a " package " - with other compounds. Do you know the NT factor is

the key nutrient, or are the other things helping you? Maybe I'm

confused, is it available as a separate nutrient?

Take care,

RH

> Yes.. I asked Dr Cohen about NAHD and he said that Dr Shoffner is

recommending it but Dr Cohen admitted that he didn't know anything

about it. He said to go ahead and try it if I wanted to. I looked

it up and what I found was a high concentration of Niacin which is a

huge No No for me so I turned away from trying it. NT has niacin too

but not much and it hasn't seemed to bother me - at least not yet.

>

> I am sure that what will work for some won't work for others. I'm

glad that some are finding that NAHD is helpful to them.

>

> Alice

> Re: Alice's Results with NT Factor

>

>

> > And yes, I understand that we shouldn't be taking things

without

> > our docs advice or knowledge, but at times we have to take the

> >*Bull by the Horns* and take care of ourselves when our docs

seem to

> > be stuck as to what to do next for us.

>

> NADH is on the mito cocktail list, and my MDA clinic doctor, who

> knows a good bit about mito disorders, says " try things on the

mito

> cocktail list, if it works, use it. If it doesn't, try something

> else. " So NADH was something I wanted to try, after taking CoQ10

and

> carnitine (and Carnitor), and not having any luck.

>

> So I did have clearance to try anything on the mito cocktail list.

>

> BUT, the big problem is that the supplement industry is not

> standardized, so as you can see on our discussions about CoQ10,

QGel,

> Carnitor, carnitine, etc., what you see may not be what you get,

or

> if I try NADH, and it works, it may not work for you if, say, you

run

> and get the CVS brand of NADH. So, although I hate mentioning

brand

> names, it seems that often it is necessary to be clear and

consistent.

>

> Take care,

> RH

>

>

>

>

>

[Guest guest]

This was my question exactly, but we did find that NT factor is

available as a separate product, though the products that are most

readily available on the web are combos--vitamin supplements that

use NT factor as a base. If you go to www.ntfactor.com, there are

links to other sites or a company number to call. Retail is listed

as $48 for 90 tablets.

It is my understanding that the " key " ingredient is

phosphoglycolipids. Most other ingredients (present in small to tiny

amounts) are co-factors necessary for uptake and metabolism of the

phosphoglycolipids.

For more, see http://www.drhoffman.com/page.cfm/332

Barbara

> My understanding of one of the NT factor cons is that it is

contained

> in a " package " - with other compounds. Do you know the NT factor

is

> the key nutrient, or are the other things helping you? Maybe I'm

> confused, is it available as a separate nutrient?

>

> Take care,

> RH

>

[Guest guest]

Congratulations Alice....

I am so happy for you'