reaction to COQ10

[Guest guest]

I have two question on COQ10.

First) on the bottle it postsa warning not to take if you have a autoimmune

disorder..anyone know why?

secondly) eventhough I have Lupus I went ahead and tried one pill because my

doc said go ahead, shortly after taking the dose I developed a severe headache

and a fever and my cheeks and neck turned bright red, like my lupus rash...

anyone else get these affects?

thanks

[Guest guest]

Alice,

my doc did reccommend the COQ10..he said to try it and see how I react..

he said to try one dose and see...I saw...think I wont do that again.

I am so sensitive to drugs its pathetic..one dose is all it takes usually.

[Guest guest]

,

Did your doctor recommend the CoQ? If not - please stop taking it immediately

and I would consult with your doctor about this reaction. Not everyone can take

CoQ just like other meds and supplements. I have a similar reaction to Niacin

and people look at me like I'm crazy when I say that but I do and have had to go

to the hospital for shots in the past because the reaction was so bad. If I get

straight niacin, my skin turns purple and draws up so that I can't move my hands

and it hurts to smile because the skin is so tight.

Alice

I have two question on COQ10.

First) on the bottle it postsa warning not to take if you have a autoimmune

disorder..anyone know why?

secondly) eventhough I have Lupus I went ahead and tried one pill because my

doc said go ahead, shortly after taking the dose I developed a severe headache

and a fever and my cheeks and neck turned bright red, like my lupus rash...

anyone else get these affects?

thanks

[Guest guest]

,

I would stop the CoQ10 and ask your doctor about it. Not

everyone can take CoQ10. I have problems with that and Carnitor. They

seem to make me worse. I would check with your doctor before you take

any more.

Smiles,

a

I have two question on COQ10.

First) on the bottle it postsa warning not to take if you have a

autoimmune

disorder..anyone know why?

secondly) eventhough I have Lupus I went ahead and tried one pill

because my

doc said go ahead, shortly after taking the dose I developed a severe

headache

and a fever and my cheeks and neck turned bright red, like my lupus

rash...

anyone else get these affects?

thanks

[Guest guest]

> ,

> I would stop the CoQ10 and ask your doctor about it. Not

> everyone can take CoQ10. I have problems with that and Carnitor.

> They

> seem to make me worse.

Yes, both CoQ10 and Carnitor make me worse as well. NADH works well

for me.

Take care,

RH

>I would check with your doctor before you take

> any more.

>

> Smiles,

> a

>

> I have two question on COQ10.

> First) on the bottle it postsa warning not to take if you have a

> autoimmune

> disorder..anyone know why?

> secondly) eventhough I have Lupus I went ahead and tried one pill

> because my

> doc said go ahead, shortly after taking the dose I developed a

severe

> headache

> and a fever and my cheeks and neck turned bright red, like my

lupus

> rash...

> anyone else get these affects?

> thanks

>

>

[Guest guest]

RH brought up NADH. I have not tried this but I am taking NT Factor which was

not recommended by any physician but introduced to me thru a private message to

me as listowner of Mitoldies. I have been on it 4 weeks now and the results are

amazing. I have found that I have more energy and endurance than I have had in

a very long time. You all know how sick I was and when I received the owner

message about NT Factor, I was very skeptical but out of desperation, I decided

to try it. I can't even begin to tell you what a difference it has made for me.

I have told others, including family members about this product and they have

tried it. Out of 7 people who are now taking it, 5 are all sharing my very

surprising results. One of the two who didn't share my results had an increase

of Mito symptoms and the other had a problem with heart racing. This just goes

to show how we are so different and what one of us can take can work wonders

while others have a totally different reaction. I cannot take the CoQ made by

Tischon. If it ever gets approved as a drug, I still won't be able to take it.

I can't take straight Niacin. It's a very serious problem for me. But I can

sure take NT Factor and I intend to continue to do so, even without the doctor's

approval. It has made my life much easier to live, given me the ability to cope

with what I cannot change and has me out of the recliner and up and about doing

things I haven't been able to do for months. Today, I cut shrubs, cleared them

and bagged the results of my work to go to the dump. I can't believe I could do

this in 90 degree heat but I did, came in and drank water and then came to the

computer which is something else I had just about given up.

This is not an advertisement for the product. I just felt I needed to share

this with the group since we are on the subject of different methods of

combating the effects of the disease so that life is more livable. There is no

cure so finding something that helps is about all we can do.

I am not recommending that anyone else do what I have done. It really isn't a

good idea to take something without the doctor's recommendation but for me, I'd

gone months to so many appointments and nothing they recommended was helping.

Suddenly, after taking a chance, this is making a huge difference in my life and

some others that I know and the change is noticeable within 48 hours.

Alice

> ,

> I would stop the CoQ10 and ask your doctor about it. Not

> everyone can take CoQ10. I have problems with that and Carnitor.

> They

> seem to make me worse.

Yes, both CoQ10 and Carnitor make me worse as well. NADH works well

for me.

Take care,

RH

[Guest guest]

Alice,

I've had wierd reactions like that, too. Yeah, it lowered my blood

pressure, but it increased my flushing, etc. I was never sure if it

was the Co-Q10 or just me. If you have allergies, you have to be

careful, since many formulations use soy oil.

As for autoimmune disease, there was one study that showed an

activation of white blood cells with Co-Q10. IT wasn't conclusive,

and no corroborative studies were done. There is more info on it at

the Q-Gel site.

Thanks,

Mike

> Alice,

> my doc did reccommend the COQ10..he said to try it and see how I

react..

> he said to try one dose and see...I saw...think I wont do that

again.

> I am so sensitive to drugs its pathetic..one dose is all it takes

usually.

>

>

>

>

[Guest guest]

That's great to hear it is working for you. It seems relatively safe

based on the website info. It doesn't look like NT Factor and NADH

are related, I may be looking into NT Factor then.

I am doing well being in ketosis from an Atkins-like diet, more

strength than I've had in years. Also lost 12 lbs...

My question is, Alice, do you see all symptoms equally improved? I

find being in ketosis helps my overall body strength, but doesn't

help my vision symptoms too much. And my cognitive symptoms seem to

be related to high ammonia, they come and go. But I don't notice

other symptoms getting worse when some get better.

Once again, as Alice says, I'm not a doctor, but these are my

thoughts. Oh, and regarding NADH, I've tried other formulations and

have to take the sublingual form. For methyl sulfonyl methane, which

helps joint pain and arthritis for me (yet morphine doesn't work), I

tried 4 different brands, and have to stick with one in particular.

Take care,

RH

> > ,

> > I would stop the CoQ10 and ask your doctor about it.

Not

> > everyone can take CoQ10. I have problems with that and

Carnitor.

> > They

> > seem to make me worse.

>

> Yes, both CoQ10 and Carnitor make me worse as well. NADH works

well

> for me.

>

> Take care,

> RH

>

>

>

>