Just sent my kids to camp :( Worried Mito Mommy

[Guest guest]

Hey guys,

I just got home from taking my kids to MDA camp. this is their first

time. They have been so excited to go. took off with his counselor the

second I finished getting his stuff out of the car and I had to track him down

to say good-bye. Kira was thrilled with her 2 college age counselors and

they seemed to hit it off right away. As I left they were planning the first

cabin raid on the boys. She had no trouble getting her stuff all set up and her

g-Tube feeding pump and the girls were so good with asking her the questions

rather than me. They knew all about what she needed and even asked her where

her sunglasses she has to wear were! Krissy on the other hand was very scared.

She has 3 counselors assigned to her. The girls were so sweet and were

working really hard to try and make her feel comfortable, but she cried when I

left

and begged me to take her home. I left her there, but now I am really

worried about her. They said she would adjust, that they had all kinds of fun

stuff

planned for tonight because it is the first night which is the hardest. I am

just worried about her. She has not been away from me like this when I am in

the hospital with the other 2 she stays with a family member or close friend.

She is my one that has social adjustment issues anyway with the selective

Mutism at an early age. I put all kinds of notes in her bag and even bought her

a surprise cuddle friend that I packed in there without her knowing it. I

hope it is enough for her. It is so quiet here! I don't have any meds to get

or

formula to mix or vomit to clean up! It is so strange. My hubby is at work,

he works nights usually anyway, but it is so strange. They have never all 3

been gone at the same time! I keep telling myself that they are having the

time of their lives right now, but I also have a nagging thing going on about

Krissy! OK time for you other moms who have sent kids to camp to help me out

here!

' counselor is a paramedic, I couldn't ask for a more qualified

person for him, and they hit it off right off the bat. They got his stuff and

booked off to do the guy thing. When I found them again he told me everything

I would have told him so I was way impressed.

How do I relax guys? I took an extra blood pressure pill today knowing

it was going to be a bit stressful! I guess I have issues when it comes to my

kids! LOL It is so hard trusting their care to total strangers without me

being there. I don't even do that in a hospital for crying out loud. I never

have left them due to so many errors that have been life threatening. Anyway I

guess say a little prayer for me and the kids that this will be a positive

thing for us all.

Sorry for venting so long!

HUGS!

O and crew - Kira, , and Krisalynn Mitochondrial Myopathy-MIDS

Maternally Inherited Dysautonomia- NVD ( Nuro Vascular Dystrophy) and dad

Enrique

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