Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 , Please don't go, you have been a huge help to me an others and I will miss you and your support greatly (and truly hope that you will stay so that we can continue to help you to, to the best of our abilities). I am NOT saying that what was said was right, as NO ONE has the right to say that the way YOU are coping or dealing with YOUR children is wrong, we are ALL so different and the ways our EDS affects us is So different, or severeity levels are different and our treaments/management are different too. You are doing the best for YOUR children, and following along with the recommendations that YOU have been given by YOUR trusted medical team. Good Luck and PLEASE reconsider staying with us. Sharon Canberra, Australia Quote Link to comment Share on other sites More sharing options...
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