back from the hospital - again!

January 8, 2004

Well, just back from the hospital again. was having chest

pains and trouble breathing, which got worse this afternoon.

The xray showed no pneumothorax this time, thankfully.

But, nothing to explain the pain and breathing difficulty.

The er dr said she may be getting asthma.

And, her lung dr said the pain could be due to the inflamation they

caused during her operation, or the scar tissue. The inflamation

was caused on purpose to sort of " hold " her lung. They also removed

part of her lung, so that may be another reason for the shortness of

breath.

But, she's had the pain and shortness of breath since the operation

in June, and one pneumothorax since then, and it's gotten worse.

So we just don't know what's going on.

She also has a fever, and maybe a sinus infection. We learned she

has a deviated septum from her brain MRI which she got for her

chronic migraines.

So, now 's sick again, is sick again, and is in

bed with back pain again.

Dad is just starting to be a bit more understanding. At least he is

right this moment. Everyone is right, I guess it takes dad's longer

when they don't have to deal with it all - meaning he goes off to

work and I'm left to nurse them and take them to their dr appts.

I just can't believe it all. I keep thinking " ok, this will be the

last time we see a dr for a while " but it never happens. Between

the 4 of us, we see a doctor at least once a week, usually more.

I don't know what a person has to go through before they have a

nervous breakdown, but I can't imagine going through any more than

we have been through in the last couple of years, and I'm no was

near breaking down. Maybe it will sneak up on me when I least

expect it. I think all this $#* & is making my pain worse, instead

of giving me a breakdown.

When will it ever end? Well, if we get that EDS diagnosis in Feb, I

suppose it never will. So, as Cindy said to me on the phone today -

this is my life, these are the cards I've been dealt, and I have to

play them.

I'm so glad I have you all to vent to. It really helps.

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