Re: Aase Marit Si Joints

[Guest guest]

Hi Joyce,

Great to " see " you again!!! It has been a long while...

Thanks a lot for replying!!! Not that I am happy that others have the

same problem, but... You know what I mean... It will be wonderful

to have somebody else to discuss this with...

I have problems with my lower back also and also higher up (between

my shoulder blades), so it is not only the SI joints, but those are

the ones which just makes things so difficult. But actually, when

things slide between the shoulder blades, I am more or less totally

unable to do anything. I can often see that two vertebrae seems to

stick further out than the other ones. Either that or I get some

weird swelling in the area. I also get nerves compressed then,

affecting both arms. But luckily it doesn't happen too often. One

thing that makes that happen, is if somebody hugs me too hard. Takes

weeks go get it calmed down completely.

That is a problem with the SI joints too, if it goes out, it goes out

again much more easily. So after it happens, I have to be much more

careful. So if it happens one time when I am trying to get some sleep

e.g. in a hotel room, it often happens many times the same night. It

is rare that it happens only one time when it first happens. So I am

doing everything I can in order to prevent it from happening. I have

tried to think of so many different options for handling it. E.g.

getting a custom made adjustable headboard to take with me when I am

travelling. But it is not easy to get such things really portable.

Are you unable to lay down too? How do you sleep? How do you handle

it in your every day life? Does it go out for sure if you try to lay

down on any surface too? Or does it happen now and then?

I was actually wondering that maybe if you have your SI joints fused,

if you maybe would have to do something about the lower back at the

same time. I was totally unable to find anything on Medline about

just fusing the SI joints...

I am getting really tired of it, because I really miss being able to

get proper rest. I feel that you can't get that without laying down

properly. Also I miss a lot to be able to sleep out of my own home

without the hassle of the joint(s) going out all the time. When it

goes out, I have to get it back then and there, there is no way I can

sleep with it out. That is just not possible. I don't know if others

can manage doing that, but for me I think the pain is so bad, it is

just not possible. Maybe with a full anaesthesia, he-he...

Thanks again!!!

Aase Marit

>Hi Aase: Glad to see you back

>

>I have awful problems with my Si joints as well and my lumbar spine

>has gotten in on it too. I saw an Ortho surgeon and he told me if

>anything was done to either the SI joints or lumbar spine that there

>was a high likelihood that areas that are less unstable might

>develop the same problem, or my hips or knees. If one area is

>stabilized and other areas are still out of whack or have more

>stress on them, you could just be trading a problem in one area for

>another