Hi in the UK

[Guest guest]

Lupus is puzzling and

sometimes we wait years before they finally figure out we have it. The

type of Dr. we need is called a Rheumatologist. Seizures are pretty common.

Aching joints and muscles happen too. Extreme fatigue like no normal

person can understand. Welcome !Glad you found

us. My name is Cheryl and I live in Northern California.

USA.

We are a friendly bunch who all hurt too. Some of us have multiple

illnesses. You might too. Let us know what the Dr says. You

sure have your hands full with all those kids. If the 18 yr old is home,

she is probably a help to you. Check out this site

http://www.uklupus.co.uk/lupdat.html

This site is for fibromyalgia but you may find some advice here too. http://www.remedyfind.com/hc-Fibromyalgia.asp

We share life here with all it’s ups and downs. We joke

around but also try to provide info for each other too.

From:

HrlMich@...

Sent: Wednesday, March 17, 2004

7:39 AM

To: LUPIES

Subject: Hello

Thank you for such a warm family welcome! Excuse my

lack of knowledge - I'm a relative newcomer! I first heard SLE about my

health ten weeks ago. I've been researching on the net every spare moment

since.

I think my worst problem is CNS related - I keep losing my focus, my hearing,

my sense of smell and taste went ages ago. I can't feel

temperature. I now realise what I called my 'Shutdown' are

seizures. They happen at anytime. Doctors don't seem too interested

in them at the moment! I'm quite scared though! Last night my left arm

felt as though I had pins and needles all down it. It had shooting pains

and cramp! I'm awaiting seeing specialists! I had a lot of kidney

problems as a child and they are going to test my kidneys soon. I'm just piling

on weight and am not eating too much!

What effects of lupus are you experiencing?