physical therapy and mito?

[Guest guest]

Hi all, I've reached the point where I have a feeling that the pain

and muscle cramping aren't going to

ever be getting any better and would like to explore what sort of

therapies there are out there that

mitos use to help manage the symptoms. We are blessed with

having pretty decent health insurance

and I need to explore what they will pay for, AFTER I find out what

other mito's experience has been

with supportive modalities and I figure out what kind might help.

Pain management? Physical

therapy? Massage (do physical therapists do massage as part

of their therapy?)

Thanks for any experiences and guidance you might be able to

offer.

Anita

[Guest guest]

Anita

The things that have really worked for me are Lamictal (anti-convulsant med)

which I take all the time (helps with myoclonus and muscle pain) and Quinine

(anit-malarial drug) for cramping which I only take when needed. Quinine is

in many of the over the counter anti-cramping meds, but I don't want to be

taking the other stuff in them. Stretching twice a day also helps as long as

I am not in a crash. Using adaptive equipment instead of pushing the body

makes a huge difference and helps prevent progression.

Good luck finding something that helps.

laurie

>

> Reply-To:

> Date: Mon, 28 Jun 2004 13:20:30 -0000

> To:

> Subject: physical therapy and mito?

>

>

> Hi all, I've reached the point where I have a feeling that the pain

> and muscle cramping aren't going to

> ever be getting any better and would like to explore what sort of

> therapies there are out there that

> mitos use to help manage the symptoms. We are blessed with

> having pretty decent health insurance

> and I need to explore what they will pay for, AFTER I find out what

> other mito's experience has been

> with supportive modalities and I figure out what kind might help.

> Pain management? Physical

> therapy? Massage (do physical therapists do massage as part

> of their therapy?)

>

> Thanks for any experiences and guidance you might be able to

> offer.

>

> Anita

>

>

>

>

>

>

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