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PS Re: physical therapy and mito?

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Hi Anita,

I've been going through much of the same. I've tried Ultram and

Vioxx and they don't do anything for me. I've been taking one

Darvocette at night and it seems to help increase my sleep a little

(that helps with my breathing during the day).

I've tried PT. It has worked some to increase the range of motion

in my arms (only did it for a few times a week for about three

weeks - but there was some improvement).

I do stretches in warm water and then ice the sore muscles. That

seems to help.

But I am most optimistic about the new massage therapist that I am

seeing. He's very good and he's working on getting things back in

alignment (my hips were misaligned by an inch and a half... probably

from muscles pulling). Will they stay aligned once they're back in

place? I'm not sure. I was also hoping others would share their

experiences with this... if they have gotten permanent resolution to

some of these problems -- or if they need continued follow up.

The massage therapist is convinced that the tightened muscles around

my lungs are making it more difficult for me to breathe and he

thinks he can help reduce that pull.

I think you just need to try different things to see what works for

you. Good luck.

Maggie

> >

> > Hi all, I've reached the point where I have a feeling that the

pain

> > and muscle cramping aren't going to

> > ever be getting any better and would like to explore what sort

of

> > therapies there are out there that

> > mitos use to help manage the symptoms. We are blessed with

> > having pretty decent health insurance

> > and I need to explore what they will pay for, AFTER I find out

> what

> > other mito's experience has been

> > with supportive modalities and I figure out what kind might

> help.

> > Pain management? Physical

> > therapy? Massage (do physical therapists do massage as part

> > of their therapy?)

> >

> > Thanks for any experiences and guidance you might be able to

> > offer.

> >

> > Anita

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