Dewayne and Lynda are back

[Guest guest]

Lynda

Thanks for the update. I think of you and Dewayne offen.

Hugs,

laurie

>

> Reply-To:

> Date: Mon, 28 Jun 2004 00:10:42 -0400

> To: >

> Subject: Dewayne and Lynda are back

>

> Hi All,

> Just thought I'd give a quick update on our lives since the first of the year.

> I had my surgery and it took quite a while to get over it. Dewayne has had a

> rough 5 months in that he obviously has sleep apnea and completely quits

> breathing at night and sometimes during the day. I'm trying to stay awake at

> night and wake him up when his breathing stops. (maybe that's why I'm still

> down too) The pain has become worse and the methadone is not doing much. Our

> neurologist has sent him for a sleep study, the first appt being the 9th of

> July. Dr. said that DW was being poisoned by the Carbon dioxide and that will

> lessen the effectiveness of the pain meds. Hopefully he is right about that.

> I have been keeping kinda up to date with everyone....lots of new folks

> around. Would like to welcome each and everyone, but I am still working and

> then trying to farm in my off time. DW did get his dentures this Spring and

> they look great. He is still getting used to them and has several sores in

> his gums.....not really where they are rubbing but just sores. Anyhow I just

> wanted to jump back in and say hi. You are all in our prayers each day. I

> really appreciate the conversation about the bipaps and c pap

> machines....guess I'll learn alot about those soon. Nicki, thanks for the

> informative message about the differences of the machines....it was helpful.

> Good night, Lynda (wife and caregiver to Dewayne or DW, a mito patient)

>

>

>

[Guest guest]

Hi All,

Just thought I'd give a quick update on our lives since the first of the year.

I had my surgery and it took quite a while to get over it. Dewayne has had a

rough 5 months in that he obviously has sleep apnea and completely quits

breathing at night and sometimes during the day. I'm trying to stay awake at

night and wake him up when his breathing stops. (maybe that's why I'm still down

too) The pain has become worse and the methadone is not doing much. Our

neurologist has sent him for a sleep study, the first appt being the 9th of

July. Dr. said that DW was being poisoned by the Carbon dioxide and that will

lessen the effectiveness of the pain meds. Hopefully he is right about that. I

have been keeping kinda up to date with everyone....lots of new folks around.

Would like to welcome each and everyone, but I am still working and then trying

to farm in my off time. DW did get his dentures this Spring and they look

great. He is still getting used to them and has several sores in his

gums.....not really where they are rubbing but just sores. Anyhow I just wanted

to jump back in and say hi. You are all in our prayers each day. I really

appreciate the conversation about the bipaps and c pap machines....guess I'll

learn alot about those soon. Nicki, thanks for the informative message about

the differences of the machines....it was helpful.

Good night, Lynda (wife and caregiver to Dewayne or DW, a mito patient)

[Guest guest]

Lynda It is good to hear from you

You have been missed

Please keep in touch

Hugs Jan

Dewayne and Lynda are back

> Hi All,

> Just thought I'd give a quick update on our lives since the first of the

year. I had my surgery and it took quite a while to get over it. Dewayne

has had a rough 5 months in that he obviously has sleep apnea and completely

quits breathing at night and sometimes during the day. I'm trying to stay

awake at night and wake him up when his breathing stops. (maybe that's why

I'm still down too) The pain has become worse and the methadone is not

doing much. Our neurologist has sent him for a sleep study, the first appt

being the 9th of July. Dr. said that DW was being poisoned by the Carbon

dioxide and that will lessen the effectiveness of the pain meds. Hopefully

he is right about that. I have been keeping kinda up to date with

everyone....lots of new folks around. Would like to welcome each and

everyone, but I am still working and then trying to farm in my off time. DW

did get his dentures this Spring and they look great. He is still getting

used to them and has several sores in his gums.....not really where they

are rubbing but just sores. Anyhow I just wanted to jump back in and say

hi. You are all in our prayers each day. I really appreciate the

conversation about the bipaps and c pap machines....guess I'll learn alot

about those soon. Nicki, thanks for the informative message about the

differences of the machines....it was helpful.

> Good night, Lynda (wife and caregiver to Dewayne or DW, a mito patient)

>

>

>

[Guest guest]

Lynda,

So glad to have you back and posting again. I hope this is the first of

many updates to come. You and DW and Spencer have remained in my thoughts and

prayers. Hope the sleep study goes well and that DW gets some relief from

his pain very soon.

Hugs to you,

[Guest guest]

Do you think rubbing the sores with aloe vera would help? or taking an aloe

supplement? A lot of times aloe works wonders for me personally. Of

course, the usual disclaimer, make sure it doesnt counteract with other meds

etc. I personally would do an internet search to make sure it doesnt

counter anything, or have side effects that would be contraindicated in his

case, as well as ask doc if there is any reason not to take it.

HUGS

> Hi All,

> Just thought I'd give a quick update on our lives since the first of the

year. I had my surgery and it took quite a while to get over it. Dewayne

has had a rough 5 months in that he obviously has sleep apnea and completely

quits breathing at night and sometimes during the day. I'm trying to stay

awake at night and wake him up when his breathing stops. (maybe that's why

I'm still down too) The pain has become worse and the methadone is not

doing much. Our neurologist has sent him for a sleep study, the first appt

being the 9th of July. Dr. said that DW was being poisoned by the Carbon

dioxide and that will lessen the effectiveness of the pain meds. Hopefully

he is right about that. I have been keeping kinda up to date with

everyone....lots of new folks around. Would like to welcome each and

everyone, but I am still working and then trying to farm in my off time. DW

did get his dentures this Spring and they look great. He is still getting

used to them and has several sores in his gums.....not really where they

are rubbing but just sores. Anyhow I just wanted to jump back in and say

hi. You are all in our prayers each day. I really appreciate the

conversation about the bipaps and c pap machines....guess I'll learn alot

about those soon. Nicki, thanks for the informative message about the

differences of the machines....it was helpful.

> Good night, Lynda (wife and caregiver to Dewayne or DW, a mito patient)

>

[Guest guest]

Hi Lynda,

Welcome back! I am sorry to hear of DW's continuing problems. It

sounds like the apnea is really doing a number on him (and you). I

hope that you both can find some answers from the sleep study, and he

can get some relief, and you can get some sleep. My mom knows how

that goes, she is always up with me and my apneas/alarms. She truly

is an amazing and strong woman, and so are you! DW and I are blessed

to have women like the two of you in our lives. Hopefully his doc is

right about the apnea affecting the meds, and that his pain will be

under better control once the apnea is treated successfully. Let me

know if you have any more questions about the machines/masks, etc. I

am thinking about the both of you!

Keep Smiling,

Nikki

> Hi All,

> Just thought I'd give a quick update on our lives since the first

of the year. I had my surgery and it took quite a while to get over

it. Dewayne has had a rough 5 months in that he obviously has sleep

apnea and completely quits breathing at night and sometimes during

the day. I'm trying to stay awake at night and wake him up when his

breathing stops. (maybe that's why I'm still down too) The pain has

become worse and the methadone is not doing much. Our neurologist

has sent him for a sleep study, the first appt being the 9th of

July. Dr. said that DW was being poisoned by the Carbon dioxide and

that will lessen the effectiveness of the pain meds. Hopefully he is

right about that. I have been keeping kinda up to date with

everyone....lots of new folks around. Would like to welcome each and

everyone, but I am still working and then trying to farm in my off

time. DW did get his dentures this Spring and they look great. He

is still getting used to them and has several sores in his

gums.....not really where they are rubbing but just sores. Anyhow I

just wanted to jump back in and say hi. You are all in our prayers

each day. I really appreciate the conversation about the bipaps and

c pap machines....guess I'll learn alot about those soon. Nicki,

thanks for the informative message about the differences of the

machines....it was helpful.

> Good night, Lynda (wife and caregiver to Dewayne or DW, a mito

patient)

>

>

>