Hi Gwennie-Re: I am new to this group

[Guest guest]

Hi Gwennie, Welcome to the group....though so sorry that it looks

like you have a disease that will make you fit right in here. I'm a

relative " newbie' , too, and you've come to a place " inhabited " by

LOTS wonderful, caring and knowledgeable people.

I am SO impressed with your doc. They sound like one in a

million to have even THOUGHT of mito for you. Maybe things in

the medical world ARE slowly changing.

Best Wishes in your mito journey. Wishing you many more up

days than down.

Anita in PA

(thiamine-responsive PDH)

[Guest guest]

Anita ...

Thank you for the warm welcome ... I am so blessed to have my Rheumatologist

.... he has been so wonderful to me ... he is also my mother's Rheumatologist and

that is actually how I met him was through my mom when I went with her to her

first appointment with him when she relocated to live closer to me and need to

have a new Rheumatologist that was easier to get to see as her former one is

over 2 hours away now ... he is a wonderful man and has been so compassionate to

me and all that I am going through ... I have cried on his shoulder many times

and he always knows just what to say to boost my spirits right back up ... and

from what I have read it seems that for many of you it has been a battle all on

its own just to find out that you have Mito ... so now I feel even more blessed

that my Rheumatologist had been so inclined to see if Mito is what I have with

out me having to search and search for answers like so many others have had to

do ... I also wish you good days and thanks again for your kind words

~ Gwenni ~

Hi Gwennie-Re: I am new to this group

Hi Gwennie, Welcome to the group....though so sorry that it looks

like you have a disease that will make you fit right in here. I'm a

relative " newbie' , too, and you've come to a place " inhabited " by

LOTS wonderful, caring and knowledgeable people.

I am SO impressed with your doc. They sound like one in a

million to have even THOUGHT of mito for you. Maybe things in

the medical world ARE slowly changing.

Best Wishes in your mito journey. Wishing you many more up

days than down.

Anita in PA

(thiamine-responsive PDH)

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