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My personal thoughts about Mattie

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Thank you Alice for letting us know. He was a true hero and a wonderful

inspiration for the whole world, with and without mito. My heart goes

out to his Mom.

Alice wrote:

>I know that this is very sad news today. Mattie, even at his very

>young age, was our leader. He made us all very proud. He opened

>many eyes to this disease and did it with courage, honor and

>dignity. There was so much life in his disease ridden body.

>

>His many poems and media interviews will always remain in our

>minds. He is at rest now and his suffering is over but his Mom is

>left behind and her pain must be nearly impossible to bear. My

>thoughts and prayers go out to her today.

>

>Today is a very sad day for the MDA and for victims of Mitochondrial

>Disease. It strengthens my convictions to do even more to fight

>this disease and do everything I can to help find a cure. To much

>of my posterity depends on this.

>

>Alice

>

>

>

>

>Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

>Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

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