Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 Thanks Janie, That is encouraging that you saw 10% correction with band 1. After 4.5 weeks Nate has gone from 95% to 92%. Sometimes I look at his head and feel like it is getting better and then other times I am discouraged by how flat it still seems. I know it has only been 5 weeks but I always wonder if 1 band will be enough. I can't wait to see 's pics. Best of luck on your home stretch. Bobbi H. 7 months tort/brachy/plagio DOC band 5/8/06 Phx > Bobbi > > I went to CT today and asked what 's Cepalic Index was before treatment, and it was 102.2. He was wider from ear to ear than he was long. He had a rectangle shaped head. After Doc Band #1, his cepalic Index was 92.9. I have seen much improvement w/ Doc band #2, and he graduates on June 27 after 7 mos. of wearing time. I will post before/after pics after the 27th. > > Janie > Doc Band 7 mos. > > Bobbi <heybobbisox@...> wrote: > 's band looks great in the pics. He has beautiful blue eyes. > If you find out his cephalic index before and after DOC band #1 and > then maybe at the end of #2 that would be great. Just curious how > he has done by the numbers. Of course my concern is that Nate will > need another band and we are paying out of pocket. Oh well, it > really doesn't matter in the grand scheme. Lots of luck to you at > the end of the month. > > Bobbi H. > 7 months tor/brachy/plagio > DOC Band 5/8/06 > PHX > > > > > > 's pics are on the 7th page of the J's. It's under P. > These were taken the third day he got his band on Nov. 24, 2005. My > husband painted the band and applied stickers to it. > > > > Janie > > > > " Janie P. " <rjjpencek@> wrote: > > Bobbi, > > > > I looked at 's pics ( he sure is cute), but I will have to > look back at 's pics they took at CT, But I think my sons head > was higher and flatter that your son was. > > I will post bfore/after pics when they do the exit pics at the > end of June. > > > > Janie > > > > Bobbi <heybobbisox@> wrote: > > I just read your second post about having his second band coming > to > > an end soon. My son got his DOC band 2 days before he turned 6 > > months. His pics are at the end of the N album ( H) if you > > want to take a look to compare to you son. Thanks again for your > > help. > > > > Bobbi H. > > 7 months/tort/brachy/plagio > > DOC band 5/8/06 > > PHX > > > > > > > > > > Janie, I read your post and my son also has severe brachy. His > > > cephalic index is 95%. I was just wondering where you are in > the > > > process and what results you have seen so far if you wouldn't > mind > > > sharing. He has been in his DOC band 4 weeks. I noticed at one > > > week the bottom portion where his occipital bone is has popped > out > > > across the back. But since then not too much, excpet maybe that > > > popped out a little more. The top back is still very flat. I > > know > > > brachy is very hard to correct. I was just wondering about your > > > experience. Thanks in advance. > > > > > > Bobbi H. > > > tort/brachy/plagio > > > DOC band 5/8/06 > > > PHX > > > > > > > > > > > > > My son had severe brachy that his pedi said at 3 mos and at 6 > > mos > > > would round out when he sits up. I didn't believe her and > wanted > > a > > > second opinion from a neurologist and a neursurgeon. Boyh > agreed > > > that he needed to have a band. I went to the Plagio clinic at > > > Children's Medical Center in Dallas. The did some measurement > and > > > said that he was in range for a band. They wrote the RX and we > > went > > > to cranial tech to get a band. The whole process took about a > > month. > > > > Try to go to a neurosurgeon or a hospital that has a plagio > > > clinic. > > > > > > > > I hope this helps. > > > > > > > > Janie > > > > > > > > carolyn fox <cdfox@> wrote: > > > > You're story breaks my heart. I'm very sorry to hear that > > > you've had to > > > > live with plagio. Please continue to post here so others my > > > benefit from > > > > your plagio. Best. > > > > > > > > Carolyn in NYC > > > > Mum to Malcolm - 7 mos - Doc band 3/27, Doc band #2 6/9 > > > > > > > > Re: Will it really go away on its own? > > > > > > > > Hi, > > > > > > > > I'm an adult with plagio. The docs told my parents the same > > thing > > > > when I was an infant. They also said that if it didnt go away > on > > > > it's own, we could pursue surgery (if that's what I chose to > > do), > > > > when I was done growing. > > > > > > > > I've lived with the plagio my whole life. It is not something > I > > > > chose for myself, and it is not something I've enjoyed dealing > > > with. > > > > I too wish the docs would have been more proactive with my > > > > situation. I grew up with the same hairstyle in hopes to hide > > the > > > > shape of my head from the world. Are you kidding me? You can't > > > make > > > > the shape of your head any less conspicuous. I grew very tired > > of > > > > hiding behind my hair. With that mentality, I also hid away > from > > > > other activities in life that I would enjoy. > > > > > > > > I say, this is your child, this is your life, this is your > > > decision. > > > > Do not allow the doctors to dictate what you know in your > heart > > is > > > > best for your child. For whatever reason, they are being > > > > unaccommodating with your needs. Keep persisting, and be firm. > > > They > > > > must comply once they see how strongly you feel about it. > > > Eventually > > > > you will find a doc who is compassionate and understanding of > > your > > > > situation. Dont give up until you feel you have exhausted all > > your > > > > resources. > > > > > > > > Best wishes, > > > > > > > > > > > > > > > > > > > > > > Hi, i'm new to this whole group thing so if someone already > > > asked > > > > the > > > > > question, please let me know where I can find the answer. > > > > > > > > > > My daughter is four months old has moderate > plagio. > > I > > > > have > > > > > been taking her to the doctor regarding her head shape since > > she > > > > was 6 > > > > > weeks old and they keep telling me that it will go away. > Well > > it > > > > > hasen't and it doesn't seem to be getting any better. I keep > > > going > > > > to > > > > > different doctors to see if they will give me a different > > > response > > > > and > > > > > they all have the same answer. " Lots of tummy time, > > reposintion, > > > > and > > > > > it will all go away after she starts to sit up on her own " . > > The > > > > whole > > > > > tummy time thing isn't working because she can only stand it > > for > > > > about > > > > > 15 min at a time before she starts to cry uncontrolably. I > > feel > > > > like I > > > > > am the only one concerned about my babys head shape. One > > doctor > > > > even > > > > > had the nerve to tell me that if it didn't go away it was > okay > > > > because > > > > > I had a girl and her hair could cover it up. What a jerk! > Oh, > > > and > > > > to > > > > > top it all off I go to a miltary hospital.... not the best > > > service > > > > in > > > > > the world. What can I do to make them take action?? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
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