Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 I just wanted to comment a bit more on these. I've had mine tested twice and the first time at CCF I had a few low and a few high amino acid levels in my blood, but in the urine bout half of them were low and only 3 were high. Dr. Shields didnt feel this was anything to be concerned about except that my phenylalanine was pretty high in my urine and it should be watched. Well, with my tests from Dr. Shoffner the results were pretty different. in my blood only 3 were high (taurine, aspartic acid and glutamic acid, the last being the most abnormal) none were low in my blood. But in my urine, about a third of them were low and none were high unlike the first time they were tested and 3 were high, in fact my phenylalanine was low in my urine this time so who knows what that all means. I think that with mito, your amino acids (and organic acids for too, though mine havent been abnormal) fluctuate alot more than in the general population and even though they are low and non-specific, I believe that it is something that should be considered as a marker for mito. I know alot of people in this group have had low amino acids, especially in urine and I dont think the drs should overlook this. Would definitely be a good question to ask at the conference, look forward to hearing their response.....Adrienne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 Hi Adrienne, My blood and urine tests produce very different results. I have been told (at least I THINK I understood it correctly) that the blood levels are only indicators of the level of " raw materials " that are in your blood. I think the urine tests show more of what was actually metabolised and what the body has truely been able to use. There is also a huge difference in my BLOOD levels of certain vitamins vs FUNCTIONAL level tests which measure the byproducts that SHOULD be produced if my body were metabolising the vitamins correctly. Best Wishes, Anita > I just wanted to comment a bit more on these. I've had mine tested twice and > the first time at CCF I had a few low and a few high amino acid levels in my > blood, but in the urine bout half of them were low and only 3 were high. Dr. > Shields didnt feel this was anything to be concerned about except that my > phenylalanine was pretty high in my urine and it should be watched. Well, with my > tests from Dr. Shoffner the results were pretty different. in my blood only 3 > were high (taurine, aspartic acid and glutamic acid, the last being the most > abnormal) none were low in my blood. But in my urine, about a third of them were > low and none were high unlike the first time they were tested and 3 were high, > in fact my phenylalanine was low in my urine this time so who knows what that > all means. I think that with mito, your amino acids (and organic acids for > too, though mine havent been abnormal) fluctuate alot more than in the general > population and even though they are low and non-specific, I believe that it is > something that should be considered as a marker for mito. I know alot of > people in this group have had low amino acids, especially in urine and I dont think > the drs should overlook this. Would definitely be a good question to ask at > the conference, look forward to hearing their response.....Adrienne > > > Quote Link to comment Share on other sites More sharing options...
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