Re Dehydration

[Guest guest]

In a message dated 5/11/2004 9:49:25 PM Eastern Standard Time,

kristiep@... writes:

Last September I had a G/J tube placed primarily for enteral nutrition and

medication. I have a PEG 24. So far it has not had to be replaced, and I've

done quite well with it except for an abscess which took a very long time for my

mito system to clear up. Please feel free to ask me any questions you may

have either on list or off

Hi Kristie,

Do you have a size 24 then? That sounds sooo big! Mine is only a 20. Do you

feel like it is a good size for you or does it seem big?

How are you feeling lately?

Malisa

[Guest guest]

a,

Last September I had a G/J tube placed primarily for enteral nutrition and

medication. I have a PEG 24. So far it has not had to be replaced, and I've

done quite well with it except for an abscess which took a very long time for my

mito system to clear up. Please feel free to ask me any questions you may have

either on list or off.

Kristie

Message: 25

Date: Tue, 11 May 2004 19:45:30 -0500

Subject: Dehydration

I have been struggling with dehydration issues for a long time, as some

of you might know. It finally came to a head when I passed out at an

Insta Care. They really took me seriously then! I had been telling my

doctors about it for 6 months before that. That incident landed me in

the hospital and I am still going to the ER for fluids every couple of

days. My PCP decided that I do need a g-tube. One deciding factor was

the loss of weight and how he saw me try to drink. He told me that I

drink like a chicken! I'm not sure what that means LOL. My neurologist

agrees. Now we just have to get the GI doctor on board!

I have been researching g-tubes and thankfully Malisa has been great with

me asking questions, but I was wondering if any of you have gone through

this and if so, what kind do you have? At my MDA support group

yesterday, a woman with ALS showed me hers and it is a button g-tube. I

don't think that would work for me. I am just curious if any other

people on the list have severe dehydration issues and if they have a

g-tube.

Smiles,

a

[Guest guest]

Hi Malisa.

Yes, it is a size 24. It is pretty big, but they were concerned about blockages

because of all the meds so opted to go with a bigger bore. Like I said so far

so good. I've only had two minor blocks and both I was able to get rid of

myself.

I'm doing pretty well at present. How about you? Are you feeling any better

from the crash?

Kristie

Message: 15

Date: Tue, 11 May 2004 22:29:12 EDT

From: Malilibear@...

Subject: Re: Re Dehydration

In a message dated 5/11/2004 9:49:25 PM Eastern Standard Time,

kristiep@... writes:

Last September I had a G/J tube placed primarily for enteral nutrition and

medication. I have a PEG 24. So far it has not had to be replaced, and I've

done quite well with it except for an abscess which took a very long time for my

mito system to clear up. Please feel free to ask me any questions you may

have either on list or off

Hi Kristie,

Do you have a size 24 then? That sounds sooo big! Mine is only a 20. Do you

feel like it is a good size for you or does it seem big?

How are you feeling lately?

Malisa

[Guest guest]

In a message dated 5/12/2004 10:09:33 AM Eastern Standard Time,

kristiep@... writes:

I'm doing pretty well at present. How about you? Are you feeling any

better from the crash?

Hih Kristie,

My J-tube is actually a size 10!! It's about the size of IV tubing! Much

smaller than my G-tube.

I am doing prettty well too. I finally have a little bit of energy back. I am

trying to find a job as a peds nurse that is only one to two days a week. You

would think this would be easy, but it's actually pretty hard to find.

Hopefully I will be able to find something that I like that won't be too

strenuous

for me. Glad you are doing well too!

Malisa