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Re: Alice - Surprise Addition

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Well..I have an addtion to this message. Just a few minutes ago, the health

care company dropped off oxygen. When I said how do you hook this up to my CPAP

he was surprised and said you need another connection. So tomorrow sometime, a

respiratory therapist will be coming by to show me how to use all this.

What a surprise! I had no warning that they were coming but I feel some relief

as I was very sure it was something I need.

Alice

Re: Alice

I'm doing somewhat better but still not doing well. I've added oxygenated

water and Creatine to my daily intake as I just had to do something. I had

pulse ox testing overnight that was low but have more pulmonary testing on 3/19

and an appt with the pulmo on 6/4. This has been a painstakingly slow process.

The overnight pulse ox testing was on 86 every time I woke up and believe me

that was often.

I am waiting to hear about the reschedule for mapping either on 6/17, 28 or

29. I hope to be on oxygen then if it is proven that I need it as my doctor

believes that this could be a major part of the inability of the CI to be doing

it's job.

Thanks for asking.

Alice

[

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HI Alice, I'm so happy for you that the oxygen in coming. Hope by

tomorrow you're all hooked up and ready to go. There is a lot to

be said for it! I'm " in love " with my concentrator and with my

portable tanks I'm able to keep working.

Best Wishes,

Anita

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HI Alice, I'm so happy for you that the oxygen in coming. Hope by

tomorrow you're all hooked up and ready to go. There is a lot to

be said for it! I'm " in love " with my concentrator and with my

portable tanks I'm able to keep working.

Best Wishes,

Anita

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I have a large thingy here that you plug in and has the water on it and the

tubing.. I also have an " emergency " cylinder that has 18 hours of oxygen in it.

The guy set it at " 2 " - whatever that means.

I'm looking forward to the RT tomorrow because then maybe I'll know what I'm

doing.

Alice

Re: Alice

>

>

> I'm doing somewhat better but still not doing well. I've added oxygenated

> water and Creatine to my daily intake as I just had to do something. I had

> pulse ox testing overnight that was low but have more pulmonary testing on

> 3/19 and an appt with the pulmo on 6/4. This has been a painstakingly slow

> process. The overnight pulse ox testing was on 86 every time I woke up and

> believe me that was often.

>

> I am waiting to hear about the reschedule for mapping either on 6/17, 28 or

> 29. I hope to be on oxygen then if it is proven that I need it as my doctor

> believes that this could be a major part of the inability of the CI to be

> doing it's job.

>

> Thanks for asking.

>

> Alice

>

> [

>

>

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Alice

I am glad that you are going to get some O2. I know just the connector you

need. It can be put at either end of the main CPAP hose. I have found I

prefer to have it at the machine end. I don't get tangled in the O2 tubing

that way. One tube is enough. If they want to have it the other way, ask

them for the clips that hold one tube to the other. That certainly helps. Do

you know how much O2 you will be using? Do you have a cylinder of O2 or a

concentrator? I have a concentrator and then a large cylinder for a backup

when the power goes out. I can also get small cylinder's for traveling.

laurie

>

> Reply-To:

> Date: Tue, 11 May 2004 17:17:30 -0600

> To: >

> Subject: Re: Alice - Surprise Addition

>

> Well..I have an addtion to this message. Just a few minutes ago, the health

> care company dropped off oxygen. When I said how do you hook this up to my

> CPAP he was surprised and said you need another connection. So tomorrow

> sometime, a respiratory therapist will be coming by to show me how to use all

> this.

>

> What a surprise! I had no warning that they were coming but I feel some

> relief as I was very sure it was something I need.

>

> Alice

> Re: Alice

>

>

> I'm doing somewhat better but still not doing well. I've added oxygenated

> water and Creatine to my daily intake as I just had to do something. I had

> pulse ox testing overnight that was low but have more pulmonary testing on

> 3/19 and an appt with the pulmo on 6/4. This has been a painstakingly slow

> process. The overnight pulse ox testing was on 86 every time I woke up and

> believe me that was often.

>

> I am waiting to hear about the reschedule for mapping either on 6/17, 28 or

> 29. I hope to be on oxygen then if it is proven that I need it as my doctor

> believes that this could be a major part of the inability of the CI to be

> doing it's job.

>

> Thanks for asking.

>

> Alice

>

> [

>

>

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Alice

The big thingy you plug in is a concentrator. It takes in room air and

extracts the oxygen. The " 2 " means you will be getting 2 liters of O2 per

minute. I am using " 1 " L. My CPAP has the humidifier instead of the

concentrator, but otherwise seems to sound much the same. I hope your

concentrator is on wheels, so you can move it to clean - they are heavy.

Good luck today!

laurie

>

> Reply-To:

> Date: Tue, 11 May 2004 20:21:19 -0600

> To: >

> Subject: Re: Alice - Surprise Addition

>

> I have a large thingy here that you plug in and has the water on it and the

> tubing.. I also have an " emergency " cylinder that has 18 hours of oxygen in

> it. The guy set it at " 2 " - whatever that means.

>

> I'm looking forward to the RT tomorrow because then maybe I'll know what I'm

> doing.

>

> Alice

> Re: Alice

>>

>>

>> I'm doing somewhat better but still not doing well. I've added oxygenated

>> water and Creatine to my daily intake as I just had to do something. I had

>> pulse ox testing overnight that was low but have more pulmonary testing on

>> 3/19 and an appt with the pulmo on 6/4. This has been a painstakingly slow

>> process. The overnight pulse ox testing was on 86 every time I woke up and

>> believe me that was often.

>>

>> I am waiting to hear about the reschedule for mapping either on 6/17, 28 or

>> 29. I hope to be on oxygen then if it is proven that I need it as my doctor

>> believes that this could be a major part of the inability of the CI to be

>> doing it's job.

>>

>> Thanks for asking.

>>

>> Alice

>>

>> [

>>

>>

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Yes..it's on wheels. My CPAP also has a humidifier so I imagine I don't need to

use both of them. I don't have a trip planned soon but since I didn't get

anything that would be considered " portable " wonder if I should mention this.

I thought the big thing was a concentrator. Funny...My Dad was on oxygen over

10 years ago and he didn't have a concentrator. He had tanks that they had to

come and replace. I'm sure this is better.

I hope the RT is able to explain it all to me. I'm not having any luck hearing

these people, expecially with their Mexican accents. I sure couldn't understand

the poor guy yesterday.

Does 2 liters of oxygen a minute seem like a lot?

Alice

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Hi Alice, So glad the concentrator is coming in to your life! The

reason why your dad didn't have one is that I don't think they

existed back then, or at least weren't common or affordable.

Back in the dark ages I used to have a big ole tank, too. One of

the problems with the doncentrator vs the big old metal tanks, is

that the little " travel " tanks and the adaptor for filling

supplemental " travel tanks " cost a fortune and one fill doesn't

last very long. I have to get spare traditional " D " tanks filled at the

pharmacy for out of the house oxygen.

I urge you to check " out of house " oxygen possibilities when the

RT comes.

I use it set at 2 litres, too.

Hope you get all set up real soon.

Best Wishes,

Anita

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Guest guest

Hi Alice, So glad the concentrator is coming in to your life! The

reason why your dad didn't have one is that I don't think they

existed back then, or at least weren't common or affordable.

Back in the dark ages I used to have a big ole tank, too. One of

the problems with the doncentrator vs the big old metal tanks, is

that the little " travel " tanks and the adaptor for filling

supplemental " travel tanks " cost a fortune and one fill doesn't

last very long. I have to get spare traditional " D " tanks filled at the

pharmacy for out of the house oxygen.

I urge you to check " out of house " oxygen possibilities when the

RT comes.

I use it set at 2 litres, too.

Hope you get all set up real soon.

Best Wishes,

Anita

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Guest guest

Hi Alice, So glad the concentrator is coming in to your life! The

reason why your dad didn't have one is that I don't think they

existed back then, or at least weren't common or affordable.

Back in the dark ages I used to have a big ole tank, too. One of

the problems with the doncentrator vs the big old metal tanks, is

that the little " travel " tanks and the adaptor for filling

supplemental " travel tanks " cost a fortune and one fill doesn't

last very long. I have to get spare traditional " D " tanks filled at the

pharmacy for out of the house oxygen.

I urge you to check " out of house " oxygen possibilities when the

RT comes.

I use it set at 2 litres, too.

Hope you get all set up real soon.

Best Wishes,

Anita

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Guest guest

Hi Alice,

Oh I am so happy they went ahead and put you on the oxygen. I knew they

would with your sats being what they were. I bet you will feel a lot more

pep now. When I started it everyone noticed that I looked better right

away, my skin and eyes looked so much brighter. and these folks didn't know

I was on it, so it was amazing that they could tell so quickly.

I Have a very nice looking large cylinder that sits in my bedroom, not

objectionable at all. It is called " liquid oxygen " I do not have a

humidifier as I have not needed one, but if I had a problem they would order

that for it. I am on 1 liter per minute. I also have a portable canister

that is nice looking. I can fill that myself off the cylinder if I need it

to go somewhere. I take that if I am going over night for one night, or if

I need the oxygen during the day while I am out (only when i am fatigued).

I also have 75 feet of tubing, so that I can go anywhere in the house still

attached if need be . when I am going away for a few days, they send me out

a portable concentrator to take with me. This of course needs electric and

makes noise, which drives me nuts!! I like the " liquid oxygen " so much

better as it requires no electric, (even though my home is set up with an

automatic generator that comes on in less than 60 seconds of power failure)

but no concentrator means no noise, and no added heat (which no one else

seems to notice, but I sure do!!!) I take the concentrator with me when I

go RV camping too, when I am by myself I just put it in the other room.

When the family comes, they have a choice of having my concentrator in by

where they sleep and listening to it, or the choice of the air conditioner

being up so high they freeze~ Nothing in life is perfect:)))

Are you going to be on full time or just at night?

Smiles to you,

Re: Alice - Surprise Addition

> Yes..it's on wheels. My CPAP also has a humidifier so I imagine I don't

need to use both of them. I don't have a trip planned soon but since I

didn't get anything that would be considered " portable " wonder if I should

mention this.

>

> I thought the big thing was a concentrator. Funny...My Dad was on oxygen

over 10 years ago and he didn't have a concentrator. He had tanks that they

had to come and replace. I'm sure this is better.

>

> I hope the RT is able to explain it all to me. I'm not having any luck

hearing these people, expecially with their Mexican accents. I sure

couldn't understand the poor guy yesterday.

>

> Does 2 liters of oxygen a minute seem like a lot?

>

> Alice

>

>

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Alice

I would guess that your low stats had them come up with this amount. It is

something that is hard to determine and you want to keep it at a level that

isn't too much, but enough. Two is still a fairly low amount. I starting

taking some additional anti-oxidents when I started using the O2.

I'm waiting to hear what you find out.

laurie

>

> Reply-To:

> Date: Wed, 12 May 2004 05:58:44 -0600

> To: >

> Subject: Re: Alice - Surprise Addition

>

> Yes..it's on wheels. My CPAP also has a humidifier so I imagine I don't need

> to use both of them. I don't have a trip planned soon but since I didn't get

> anything that would be considered " portable " wonder if I should mention this.

>

> I thought the big thing was a concentrator. Funny...My Dad was on oxygen over

> 10 years ago and he didn't have a concentrator. He had tanks that they had to

> come and replace. I'm sure this is better.

>

> I hope the RT is able to explain it all to me. I'm not having any luck

> hearing these people, expecially with their Mexican accents. I sure couldn't

> understand the poor guy yesterday.

>

> Does 2 liters of oxygen a minute seem like a lot?

>

> Alice

>

>

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Guest guest

I miss the noise of my concentrator and CPAP when they aren't there. It is a

nice white noise, especially since I live on a two lane highway with lots of

trucks. I have my concentator at the end of the hall outside my bedroom so

it isn't as loud, but I still hear it as white noise.

laurie

>

> Reply-To:

> Date: Wed, 12 May 2004 09:42:02 -0400

> To: >

> Subject: Re: Alice - Surprise Addition

>

> Hi Alice,

>

> Oh I am so happy they went ahead and put you on the oxygen. I knew they

> would with your sats being what they were. I bet you will feel a lot more

> pep now. When I started it everyone noticed that I looked better right

> away, my skin and eyes looked so much brighter. and these folks didn't know

> I was on it, so it was amazing that they could tell so quickly.

>

> I Have a very nice looking large cylinder that sits in my bedroom, not

> objectionable at all. It is called " liquid oxygen " I do not have a

> humidifier as I have not needed one, but if I had a problem they would order

> that for it. I am on 1 liter per minute. I also have a portable canister

> that is nice looking. I can fill that myself off the cylinder if I need it

> to go somewhere. I take that if I am going over night for one night, or if

> I need the oxygen during the day while I am out (only when i am fatigued).

> I also have 75 feet of tubing, so that I can go anywhere in the house still

> attached if need be . when I am going away for a few days, they send me out

> a portable concentrator to take with me. This of course needs electric and

> makes noise, which drives me nuts!! I like the " liquid oxygen " so much

> better as it requires no electric, (even though my home is set up with an

> automatic generator that comes on in less than 60 seconds of power failure)

> but no concentrator means no noise, and no added heat (which no one else

> seems to notice, but I sure do!!!) I take the concentrator with me when I

> go RV camping too, when I am by myself I just put it in the other room.

> When the family comes, they have a choice of having my concentrator in by

> where they sleep and listening to it, or the choice of the air conditioner

> being up so high they freeze~ Nothing in life is perfect:)))

>

> Are you going to be on full time or just at night?

>

> Smiles to you,

>

>

> Re: Alice - Surprise Addition

>

>

>> Yes..it's on wheels. My CPAP also has a humidifier so I imagine I don't

> need to use both of them. I don't have a trip planned soon but since I

> didn't get anything that would be considered " portable " wonder if I should

> mention this.

>>

>> I thought the big thing was a concentrator. Funny...My Dad was on oxygen

> over 10 years ago and he didn't have a concentrator. He had tanks that they

> had to come and replace. I'm sure this is better.

>>

>> I hope the RT is able to explain it all to me. I'm not having any luck

> hearing these people, expecially with their Mexican accents. I sure

> couldn't understand the poor guy yesterday.

>>

>> Does 2 liters of oxygen a minute seem like a lot?

>>

>> Alice

>>

>>

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Anita

I have an " M " tank for back-up when the power goes out. I then just call my

supplier to bring out portable tanks, such as " E " size and a wheeled unit

that holds them. I would like to get a humidifier for the back up tank

because without power, the CPAP doesn't work. I see my pulmonologist on

Friday after my testing and my sleep study is coming up later this month, so

I am going to talk to him about a battery back-up CPAP and a different type

of humidifier. I use a different supplier and this is a different doc since

I went on the CPAP and O2.

laurie

>

> Reply-To:

> Date: Wed, 12 May 2004 13:17:19 -0000

> To:

> Subject: Re: Alice - Surprise Addition

>

> Hi Alice, So glad the concentrator is coming in to your life! The

> reason why your dad didn't have one is that I don't think they

> existed back then, or at least weren't common or affordable.

> Back in the dark ages I used to have a big ole tank, too. One of

> the problems with the doncentrator vs the big old metal tanks, is

> that the little " travel " tanks and the adaptor for filling

> supplemental " travel tanks " cost a fortune and one fill doesn't

> last very long. I have to get spare traditional " D " tanks filled at the

> pharmacy for out of the house oxygen.

>

> I urge you to check " out of house " oxygen possibilities when the

> RT comes.

>

> I use it set at 2 litres, too.

>

> Hope you get all set up real soon.

>

> Best Wishes,

> Anita

>

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

> ----------------------------------------------------------------------------

>

>

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Laurie,

I could see how that would seem better. The concentrator is more like a

steady hum and not real offensive to most people. My friends have said it

doesn't bother them when we have gone away together and I have used it. Of

course I am never sure if they are just being my very nice friend or really

doesn't bother them:) I wonder what is the reasoning behind sending one

person a concentrator and another a cylinder of liquid oxygen? Wonder how

they decide? I know that my equipment is all brand new and I am happy about

that as I tend to be a little bit of a neat freak, but gee, they didnt know

that when they sent it! Unless my reputation proceeds me:)) And if it did,

then shame on me.

Smiles to you,

Re: Alice - Surprise Addition

> >

> >

> >> Yes..it's on wheels. My CPAP also has a humidifier so I imagine I

don't

> > need to use both of them. I don't have a trip planned soon but since I

> > didn't get anything that would be considered " portable " wonder if I

should

> > mention this.

> >>

> >> I thought the big thing was a concentrator. Funny...My Dad was on

oxygen

> > over 10 years ago and he didn't have a concentrator. He had tanks that

they

> > had to come and replace. I'm sure this is better.

> >>

> >> I hope the RT is able to explain it all to me. I'm not having any luck

> > hearing these people, expecially with their Mexican accents. I sure

> > couldn't understand the poor guy yesterday.

> >>

> >> Does 2 liters of oxygen a minute seem like a lot?

> >>

> >> Alice

> >>

> >>

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Guest guest

When a person needs to take O2 with them to work or school, it is easier to

use the liquid. It is more expensive, but the smaller units can be filled at

home. I had a student in a kindergarten class that had to be on O2 all the

time. We tried various things and ended up with a combination. The

concentrator in the classroom was a hazard to the other kids, although it

gave the student a better range of movement around the classroom. We were

going to have a large tank of liquid in the school and was trained on how to

do the fills. Then the school decided it was too great a liability. We also

had to figure in the bus ride and the danger's involved there. We ended up

with O2 cylinders at school and the liquid brought from home to use on the

bus. After all that, the mother decided to home school him the next year.

laurie

>

> Reply-To:

> Date: Wed, 12 May 2004 17:17:00 -0400

> To: >

> Subject: Re: Alice - Surprise Addition

>

> Laurie,

>

> I could see how that would seem better. The concentrator is more like a

> steady hum and not real offensive to most people. My friends have said it

> doesn't bother them when we have gone away together and I have used it. Of

> course I am never sure if they are just being my very nice friend or really

> doesn't bother them:) I wonder what is the reasoning behind sending one

> person a concentrator and another a cylinder of liquid oxygen? Wonder how

> they decide? I know that my equipment is all brand new and I am happy about

> that as I tend to be a little bit of a neat freak, but gee, they didnt know

> that when they sent it! Unless my reputation proceeds me:)) And if it did,

> then shame on me.

>

> Smiles to you,

>

> Re: Alice - Surprise Addition

>>>

>>>

>>>> Yes..it's on wheels. My CPAP also has a humidifier so I imagine I

> don't

>>> need to use both of them. I don't have a trip planned soon but since I

>>> didn't get anything that would be considered " portable " wonder if I

> should

>>> mention this.

>>>>

>>>> I thought the big thing was a concentrator. Funny...My Dad was on

> oxygen

>>> over 10 years ago and he didn't have a concentrator. He had tanks that

> they

>>> had to come and replace. I'm sure this is better.

>>>>

>>>> I hope the RT is able to explain it all to me. I'm not having any luck

>>> hearing these people, expecially with their Mexican accents. I sure

>>> couldn't understand the poor guy yesterday.

>>>>

>>>> Does 2 liters of oxygen a minute seem like a lot?

>>>>

>>>> Alice

>>>>

>>>>

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Oh I see. That is very interesting. I really never figured out why the

difference. Thanks for letting me know.

Shame after all that work the boys mom ditched it all, frustrating.

Smiles to you,

jennifer

Re: Alice - Surprise Addition

> >>>

> >>>

> >>>> Yes..it's on wheels. My CPAP also has a humidifier so I imagine I

> > don't

> >>> need to use both of them. I don't have a trip planned soon but since

I

> >>> didn't get anything that would be considered " portable " wonder if I

> > should

> >>> mention this.

> >>>>

> >>>> I thought the big thing was a concentrator. Funny...My Dad was on

> > oxygen

> >>> over 10 years ago and he didn't have a concentrator. He had tanks

that

> > they

> >>> had to come and replace. I'm sure this is better.

> >>>>

> >>>> I hope the RT is able to explain it all to me. I'm not having any

luck

> >>> hearing these people, expecially with their Mexican accents. I sure

> >>> couldn't understand the poor guy yesterday.

> >>>>

> >>>> Does 2 liters of oxygen a minute seem like a lot?

> >>>>

> >>>> Alice

> >>>>

> >>>>

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  • 2 months later...
Guest guest

Alice,

How are things now that you have been on the oxygen for a while now?

Alice wrote:

>Well..I have an addtion to this message. Just a few minutes ago, the health

care company dropped off oxygen. When I said how do you hook this up to my CPAP

he was surprised and said you need another connection. So tomorrow sometime, a

respiratory therapist will be coming by to show me how to use all this.

>

>What a surprise! I had no warning that they were coming but I feel some relief

as I was very sure it was something I need.

>

>Alice

> Re: Alice

>

>

> I'm doing somewhat better but still not doing well. I've added oxygenated

water and Creatine to my daily intake as I just had to do something. I had

pulse ox testing overnight that was low but have more pulmonary testing on 3/19

and an appt with the pulmo on 6/4. This has been a painstakingly slow process.

The overnight pulse ox testing was on 86 every time I woke up and believe me

that was often.

>

> I am waiting to hear about the reschedule for mapping either on 6/17, 28 or

29. I hope to be on oxygen then if it is proven that I need it as my doctor

believes that this could be a major part of the inability of the CI to be doing

it's job.

>

> Thanks for asking.

>

> Alice

>

> [

>

>

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Guest guest

I'm doing better but not sure that it's the oxygen. We did do another overnight

pulse ox this week to see if I still need the oxygen. The overnight tytrate

testing gave them an indication that my CPAP pressure needed to be lowered to 11

from 12 but the oxygen is still needed. I believe I need a new CPAP machine as

mine is 7 years old so the doctor's office is trying to work with my insurance

to see if they will ok one.

Alice

Alice,

How are things now that you have been on the oxygen for a while now?

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I did get the new nasal air mask which I really like. I'm so allergic to the

caps and even the cap that you should use with this gave me problems but I was

able to take it off and wear the strap on the back to hold the headgear on and

it works perfectly. I'm feeling as if I'm sleepy since we reduced the CPAP

pressure to 11 so I'm not sure that this pressure is the right one for me.

I've been on 12 for a few years so when they came and reduced it, I was very

surprised. I'm going to call the pulmonologists office on Monday to report that

I'm still feeling this way. It's been since the first day after the change to

11.

Alice

I'm glad you are getting help with the CPAP and O2. My new CPAP is now set

at 11.2. The RT said the .2 was because of the O2 coming in. I really like

the new CPAP and mask.

laurie

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Alice

I'm glad you are getting help with the CPAP and O2. My new CPAP is now set

at 11.2. The RT said the .2 was because of the O2 coming in. I really like

the new CPAP and mask.

laurie

>

> Reply-To:

> Date: Sat, 17 Jul 2004 16:18:19 -0600

> To: >

> Subject: Re: Alice - Surprise Addition

>

> I'm doing better but not sure that it's the oxygen. We did do another

> overnight pulse ox this week to see if I still need the oxygen. The overnight

> tytrate testing gave them an indication that my CPAP pressure needed to be

> lowered to 11 from 12 but the oxygen is still needed. I believe I need a new

> CPAP machine as mine is 7 years old so the doctor's office is trying to work

> with my insurance to see if they will ok one.

>

> Alice

>

>

>

> Alice,

>

> How are things now that you have been on the oxygen for a while now?

>

>

>

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Alice

According to my Pulmonologist, most people need theirs increased over time.

I also think that we can't always go by settings, but should go by how we

feel. I'm glad you are going to check with the doc.

laurie

>

> Reply-To:

> Date: Sat, 17 Jul 2004 17:10:25 -0600

> To: >

> Subject: Re: Alice - Surprise Addition

>

> I did get the new nasal air mask which I really like. I'm so allergic to the

> caps and even the cap that you should use with this gave me problems but I was

> able to take it off and wear the strap on the back to hold the headgear on and

> it works perfectly. I'm feeling as if I'm sleepy since we reduced the CPAP

> pressure to 11 so I'm not sure that this pressure is the right one for me.

> I've been on 12 for a few years so when they came and reduced it, I was very

> surprised. I'm going to call the pulmonologists office on Monday to report

> that I'm still feeling this way. It's been since the first day after the

> change to 11.

>

> Alice

>

>

> I'm glad you are getting help with the CPAP and O2. My new CPAP is now set

> at 11.2. The RT said the .2 was because of the O2 coming in. I really like

> the new CPAP and mask.

>

> laurie

>

>

>

>

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