Bug: dental work, myoclonus?

[Guest guest]

Hi Laurie, A family with multiple allergies must make things

SUPER challenging! Something to hold your mouth open during

dental work to rest the jaw and to prevent accidental biting

sounds like a great idea. I'm sure the dentist would appreciate

it, too!

Newbie question . I've heard of the term myoclonus (in fact I think

I've heard it applied to me). Is there any particular way that

generally manifests for mitos?

Thanks,

Anita

[Guest guest]

Anita

It is when a body part jerks without any conscience thought. Mine is much

less since being on Lamictal (anti-convulsant that also calms nerves), but

still get it some. It worse when I am tired. My entire body has been known

to jump off the bed, landing on the floor. Most of the time it is smaller

jerks, but it still can make things challenging to carry fragile items to

prevent from dropping them.

As for challenges, our family has Ehler Danlos syndrome with various

symptoms, the allergies and then the mito. We get by with lots of laughter

and acceptance.

laurie

>

> Reply-To:

> Date: Sun, 09 May 2004 16:30:41 -0000

> To:

> Subject: Bug: dental work, myoclonus?

>

> Hi Laurie, A family with multiple allergies must make things

> SUPER challenging! Something to hold your mouth open during

> dental work to rest the jaw and to prevent accidental biting

> sounds like a great idea. I'm sure the dentist would appreciate

> it, too!

>

> Newbie question . I've heard of the term myoclonus (in fact I think

> I've heard it applied to me). Is there any particular way that

> generally manifests for mitos?

>

> Thanks,

> Anita

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

[Guest guest]

Anita

Thanks!

laurie

>

> Reply-To:

> Date: Sun, 09 May 2004 22:02:33 -0000

> To:

> Subject: Re: Bug: dental work, myoclonus?

>

>

> Hi Laurie, Thanks for the description of myoclonus. Yup, I got

> that. This newgroups is a treasure trove of info. I'm thinking more

> and more I probably DO belong here. Pretty exciting after jerking

> around on my own for so many years.

>

> <

> symptoms, the allergies and then the mito. We get by with lots

> of laughter

>> and acceptance.>>

>

> Oh my, you are one AMAZING family! My hat off to you on Mother's

> Day.

>

> Best Wishes,

> Anita

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

> ----------------------------------------------------------------------------

>

>