Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 Hi Laurie, Thanks for your reply. The nephrologist is the one throwing his hands up in despair, with no idea what to do. We have bandied about the idea of dialysis, but the concern is that once I start it, my kidneys may shut down altogether. At the moment they have me on a modified chemo regimen that they use for some types of kidney disease. Trouble is, it blows out my immune system and I have yet to see any benefit from it. Any other ideas greatfully received. Tara Message: 6 Date: Sat, 01 May 2004 22:15:18 -0400 Subject: Re: Hi from Tara - muscle spasms and bladder issues Tara I am so sorry to hear about all the issues you and Rhys have been dealing with. It must be hard on all of you to deal with so much all at once. You will remain in my thoughts and prayers. Have you seen a nephologist for the kidney issues? Have they thought about a trial of dialysis? My guess (and this is only a guess) is that low energy makes the kidneys malfunction and then with increased energy, they return to functioning. My neighbor had kidney failure following a series of seizures because of muscle break down. Once he had dialysis for a few days, they started working again. Just some things to think about. Please let us know how things are going when you can. Hugs, This message was sent through MyMail http://www.mymail.com.au Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2004 Report Share Posted May 4, 2004 Tara I am trying to find the article on mito and kidney function that my nephrologist gave me (I begged), but my house is still a great disorganized mess. I'll keep looking. laurie > > Reply-To: > Date: Mon, 3 May 2004 15:41:57 +1000 > To: > > Subject: Tara - Kidneys > > Hi Laurie, > Thanks for your reply. The nephrologist is the one throwing his hands up in > despair, with no idea what to do. We have bandied about the idea of dialysis, > but the concern is that once I start it, my kidneys may shut down altogether. > At the moment they have me on a modified chemo regimen that they use for some > types of kidney disease. Trouble is, it blows out my immune system and I have > yet to see any benefit from it. > Any other ideas greatfully received. > Tara > Message: 6 > Date: Sat, 01 May 2004 22:15:18 -0400 > > Subject: Re: Hi from Tara - muscle spasms and bladder issues > > Tara > > I am so sorry to hear about all the issues you and Rhys have been dealing > with. It must be hard on all of you to deal with so much all at once. You > will remain in my thoughts and prayers. > > Have you seen a nephologist for the kidney issues? Have they thought about a > trial of dialysis? My guess (and this is only a guess) is that low energy > makes the kidneys malfunction and then with increased energy, they return to > functioning. My neighbor had kidney failure following a series of seizures > because of muscle break down. Once he had dialysis for a few days, they > started working again. Just some things to think about. > > Please let us know how things are going when you can. > > Hugs, > > > This message was sent through MyMail http://www.mymail.com.au > > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail is > entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with their > physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 Tara Has your nephrologist referred you to an endocrinologist? I'm thinking that there might be some dysfunction of one of the glands. I had a student who had a pituitary tumor who had similar problems following the removal of the gland. Just trying to fit pieces together. laurie > > Reply-To: > Date: Mon, 3 May 2004 15:41:57 +1000 > To: > > Subject: Tara - Kidneys > > Hi Laurie, > Thanks for your reply. The nephrologist is the one throwing his hands up in > despair, with no idea what to do. We have bandied about the idea of dialysis, > but the concern is that once I start it, my kidneys may shut down altogether. > At the moment they have me on a modified chemo regimen that they use for some > types of kidney disease. Trouble is, it blows out my immune system and I have > yet to see any benefit from it. > Any other ideas greatfully received. > Tara > Message: 6 > Date: Sat, 01 May 2004 22:15:18 -0400 > > Subject: Re: Hi from Tara - muscle spasms and bladder issues > > Tara > > I am so sorry to hear about all the issues you and Rhys have been dealing > with. It must be hard on all of you to deal with so much all at once. You > will remain in my thoughts and prayers. > > Have you seen a nephologist for the kidney issues? Have they thought about a > trial of dialysis? My guess (and this is only a guess) is that low energy > makes the kidneys malfunction and then with increased energy, they return to > functioning. My neighbor had kidney failure following a series of seizures > because of muscle break down. Once he had dialysis for a few days, they > started working again. Just some things to think about. > > Please let us know how things are going when you can. > > Hugs, > > > This message was sent through MyMail http://www.mymail.com.au > > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail is > entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with their > physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
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