heat intolerance

May 30, 2003

HI dorthy

we have seven childen 3 with mitocondrial cytopathy seven all together i

just lurk here dont write much but heat intolerance and exercise

intolerances seem to be one of our youngests biggest problem right now

a while back we bought a helmet cooler that the race car drivers use to

cool them while racing we mounted it on a vent tray on her wheelchair

she then wheres a U.V. suit we purched from one step ahead we hooked the

hose from the cooler to the leg of her suit and it works great in the

warmer day we just have to watch she does not get to cool but our

daughter get air hunger if she gets warm and then becomes very lathargic and

stops digesting it is just a down hill spiral from there we have spent

months in the hospital trying to over come all the reactions that follow her

temp getting up there good luck and God Bless cyndi

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May 2, 2004

When I used to work (at Burger King), I would get all red and white blotchy.

I wouldn't sweat and my temperature would reach 104. The manager would

tell me to take five. I would go to the sink, get my entire head, hair,

arms, and face wet, then go into the walk-in freezer and sit for awhile.

What a nightmare!

For some reason (I think it's the massive amount of zinc I take), I have

started sweating profusely ...yuk!!! Still, get all red and blotchy, though

My husband is making plans to go to Kenya, on a month long missions trip. I

have the same problem. How in the blue blazes am I gonna take the heat? He

doesn't quite understand how hard this is going to be for me. I have a hard

time going to town (3 miles away) and back, without being exhausted. Well,

the plans are only at the talking stage, now. Plenty of time to think about

it later.

Blessings,

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