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Re: Jo

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,

I will pray that the gel will work great on your daughter, it just breaks my heart when young people have this. I am also going to pray for you too, you need to be strong for her and take care of yourself too.

I just wish there was something more I could do. But know that my thoughts and prayers are with you.

Lin

Thanks Jo

I do remember Deb saying she was using a Ketamine gel....not sure if it contained all the meds.

Stacey's intestines don't work, so she doesn't eat, can't take pills, etc. They're putting the neurontin, elavil, ketamine, and lidocaine all into a cream. We had a bit of a delay getting it. When the pharmacy called me this morning (I thought--as I'd been told--to get the insurance info, they informed me it was cash only. Like forget it, no way, no how.....I called a different compounding pharmacy who'd take insurance. They had to get some more ketamine in, so will have it for me tomorrow afternoon. I'm having to go pick it up to keep from waiting longer, but after this, they'll overnight it.

As for me, well I'm trying to take care of me. It's kind of difficult when the heartstrings are getting stomped on. My pain is off the scale, but I'm trying to cope.

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  • 4 months later...
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In a message dated 3/26/2005 8:43:12 AM Eastern Standard Time,

joannetaniwa@... writes:

> Nice to be back on the list - I have a lot of catching up to do.

>

>

Sure nice to have you back Jo. I doubt if you can ever catch up here. There

are so many new people, that even I, who as been around the block, doesn't

know them all. Connie

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Thanks for the welcome back Connie.

Jo. (sorry to hear the numbers have increased - but am glad they found this

wonderful group).

Re: Jo

In a message dated 3/26/2005 8:43:12 AM Eastern Standard Time,

joannetaniwa@... writes:

> Nice to be back on the list - I have a lot of catching up to do.

>

>

Sure nice to have you back Jo. I doubt if you can ever catch up here. There

are so many new people, that even I, who as been around the block, doesn't

know them all. Connie

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