Dealing with the fear of the unknown

[Guest guest]

Hi all,

Just needing some help from those of you who have been dealing with

this awhile. I don't post much as I feel so new and overwhelmed so much

of the time still, even though it has been a year now. I went through

so many

feelings when Joe was diagnosed and then when he had such fabulous results

from starting the cocktail, it seemed that we had everything under control.

Then when I had my biopsy, I had some fear but thought that it would all

be ok,

like Joe. With the latest bad news from the endocrinologist, I feel

like I have

been run over by a semi . I am trying to let ppl know but the majority seem

to think I am just over-reacting, or feeling sorry for myself. I really

hope I am

not but on many occassions have felt your fears and pain right along

side you.

I could really use some help on not letting my imagination get the

better of me.

And dealing with this fear. Thanks so much.

AnnMarie- Complex IV

Married to my best friend Rick, mom of (14), (11), Cassandra(6)

and Joe(4) - complex IV, lactic acidosis, CP, tethered chord syndrome,

dysautonomia, and a smile that never quits :-)