Re: Dealing with the fear of the unknown

[Guest guest]

Ann Marie

Since we are all different, it is hard to say how much progression you will

have and the speed it will develop, along with your response to the

cocktail. It takes some time to get it all worked out.

I had to increase different supplements and add meds for specific problems

and change my life style before I saw some slowing down of the symptoms and

some almost disappear.

You need to give yourself permission to grieve for the loss of the body you

thought you had, but loss. Grief shows itself in fear, denial, anger and

several other ways. We are always here for you, so never feel alone as you

grieve and come to terms with what you are dealing with. I think we can all

say that at one time or another, we again have to grieve as we loose an

ability. The toughest time for me is when I had to start using a mobility

aid. Now it seems like a silly thing, but it was very hard to give in and

start using a scooter. Now I can look at my new wheelchair with excitement

and fear - only because I don't know how to drive it without running into

things.

Hugs,

laurie

>

> Reply-To:

> Date: Tue, 27 Apr 2004 15:52:37 -0500

> To: Mito Mito >, Mitoldies >

> Subject: Dealing with the fear of the unknown

>

> Hi all,

> Just needing some help from those of you who have been dealing with

> this awhile. I don't post much as I feel so new and overwhelmed so much

> of the time still, even though it has been a year now. I went through

> so many

> feelings when Joe was diagnosed and then when he had such fabulous results

> from starting the cocktail, it seemed that we had everything under control.

> Then when I had my biopsy, I had some fear but thought that it would all

> be ok,

> like Joe. With the latest bad news from the endocrinologist, I feel

> like I have

> been run over by a semi . I am trying to let ppl know but the majority seem

> to think I am just over-reacting, or feeling sorry for myself. I really

> hope I am

> not but on many occassions have felt your fears and pain right along

> side you.

> I could really use some help on not letting my imagination get the

> better of me.

> And dealing with this fear. Thanks so much.

>

> AnnMarie- Complex IV

> Married to my best friend Rick, mom of (14), (11), Cassandra(6)

> and Joe(4) - complex IV, lactic acidosis, CP, tethered chord syndrome,

> dysautonomia, and a smile that never quits :-)

>

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