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Hi,

I just received a call today that I am eligible for 100% VA medical benefits

Does anyone else see VA Doctors to treat their Mito? I am newly diagnosed

and was being seen at University Hospital of Cleveland. I am nervous about

switching doctors now especially since I was just told I need to have a

muscle biopsy done and possibly a spinal tap. I have to switch because I

just lost my medicaid (my son is receiving SS Survivor's benefits now which

puts us over income). Any input would be great. My closest VA facility

doesn't have specialists so I will have to go to Cleveland.

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Guest guest

,

I don't know of any VA doctors who treat mito--we do not live near a

military facility--the closest VA other than the one 30 miles away is 150 so

just use civilian doctors and TRICARE. I think Figgy in California will

answer. If I remember right she has CHAMPVA.

But, the doctor who diagnosed my sister and then myself and lastly my son,

is two hours away from us. I have a family gp here who handles most of the

issues.

So if you are in Cleveland you could hopefully find a good VA doctor who is

willing to learn about mito and willing to consult with Dr Cohen and the

experts at the Cleveland Clinic.

Janet Sample in Wisconsin

VA Doctors?

> Hi,

>

> I just received a call today that I am eligible for 100% VA medical

benefits

> Does anyone else see VA Doctors to treat their Mito? I am newly

diagnosed

> and was being seen at University Hospital of Cleveland. I am nervous

about

> switching doctors now especially since I was just told I need to have a

> muscle biopsy done and possibly a spinal tap. I have to switch because I

> just lost my medicaid (my son is receiving SS Survivor's benefits now

which

> puts us over income). Any input would be great. My closest VA facility

> doesn't have specialists so I will have to go to Cleveland.

>

>

>

>

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Guest guest

Thanks for the response Janet. Thankfully I am near Cleveland and

commuting is not a problem.

-- Re: VA Doctors?

,

I don't know of any VA doctors who treat mito--we do not live near a

military facility--the closest VA other than the one 30 miles away is 150 so

just use civilian doctors and TRICARE. I think Figgy in California will

answer. If I remember right she has CHAMPVA.

But, the doctor who diagnosed my sister and then myself and lastly my son,

is two hours away from us. I have a family gp here who handles most of the

issues.

So if you are in Cleveland you could hopefully find a good VA doctor who is

willing to learn about mito and willing to consult with Dr Cohen and the

experts at the Cleveland Clinic.

Janet Sample in Wisconsin

VA Doctors?

> Hi,

>

> I just received a call today that I am eligible for 100% VA medical

benefits

> Does anyone else see VA Doctors to treat their Mito? I am newly

diagnosed

> and was being seen at University Hospital of Cleveland. I am nervous

about

> switching doctors now especially since I was just told I need to have a

> muscle biopsy done and possibly a spinal tap. I have to switch because I

> just lost my medicaid (my son is receiving SS Survivor's benefits now

which

> puts us over income). Any input would be great. My closest VA facility

> doesn't have specialists so I will have to go to Cleveland.

>

>

>

>

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