Re: Doc says I'm over it!

[Guest guest]

Lyn,

I am so sorry that your dr would all of a sudden do that to you. It's stressful enough to have, live and breathe this disorder without drs doing that. I hope on his vacation he has a change of heart or reads up on RSD more..It can spread and has with mine...I have it in my neck and right arm to full upper body and now in my left leg too. Over 8 months it has went to stage 1 to stage 2 also. I can't believe a dr would say RSD doesn't spread...it's in the neurology society of america and the neurology med journals that it does spread and can spread slowly or rapidly depending on the person. I hope everything works out for you and drs...Hugs..Ginnylynlorraine wrote:

Hello everyone,I've been away from the message board and don't know how youall are doing. So I risk posting without reading the current messages. I truly hope I am not inserting during a time of crisis. Now that I've written that I am thinking every day is a crisis withRSD………… I think of you everyday and send my best wishes, prayers, and thoughts to each and everyone of you. I thought I might be able to catch up with answering the messages but that now seems like an overwhelming task. I hope you who wrote to me will understand and know that I am very grateful for your time and energy. It all helps so much.I also want to thank you for giving me whatever information you had in my search for Vic and Sharon concerning an extremely interesting research

paper,my symptoms of numbness and needles in all four extremities, and all the questions about what we have in common that has brought us to RSD,and the many light hearted laughs shared here. Every day I look at all of you on my Pin Pal Map, it makes me feel less alone in this.Right now I am searching for a new doctor…seems mine picked upsome information in the last week or two and has decided that I am"over it". Those are his words. That visit stunned me into silencefor several days. He explained away the pain as being side effects of Prednisone, said "RSD doesn't spread" and "take these (Paxil)" and see him in two weeks. No kidding! He told me to put away my notes charting the symptoms, he didn't even want to hear about any ofit. This doctor was my ally for years. Who or what did he hear or read to make him do this 180 on me? He went

from the previous week's visit of saying he just didn't know what to do for me to takingthis new position that I am "over it". He has gone on vacationthis week so when my wits finally returned he is not available to ask that very question. I am sure this story isn't over, yet.My best to you all. Hopes for a pain free day. With Love, Lyn

[Guest guest]

Ginny,

That's what I mean about being stunned into silence. I know that

I've read it, seen it, felt it, yet when my own doctor looked me in

the eye with his " smile of assurance " and said that it completely

short circuited my thinking processes and I went blank. No

arguments, nothing would come out of my mouth. I was....stunned.

Do you have any specific quotes from authorities (that discuss

spreading from lower body to upper) that I might use? I can't help

but think that he called up one of his old croonies because he just

didn't know what to do and he got one of the " bad guys " . I wonder

if I should waste my time on him. I think I might be fighting an

impossible battle with him if he is so sure of himself. If I knew

of another doctor I'd change today.

Thank you and hope you are managing with a low level pain today.

You posted about meditating and biofeedback. I had that training

and use it. It can make a huge difference in calming down the body.

It does take practice and dedication on a daily basis, I think.

Thank you. It is good to hear from you.

With love, Lyn

Ginny Barrientos <hisloss123@y...> wrote:

> Lyn,

>

>

> I am so sorry that your dr would all of a sudden do that to you.

It's stressful enough to have, live and breathe this disorder

without drs doing that. I hope on his vacation he has a change of

heart or reads up on RSD more..It can spread and has with mine...I

have it in my neck and right arm to full upper body and now in my

left leg too. Over 8 months it has went to stage 1 to stage 2 also.

I can't believe a dr would say RSD doesn't spread...it's in the

neurology society of america and the neurology med journals that it

does spread and can spread slowly or rapidly depending on the

person. I hope everything works out for you and drs...Hugs..Ginny

>