Osteonecrosis can happen anywhere !!!

[Guest guest]

I was having pain in my upper left arm for the longest time....just

kind of blew it off to my all over aches, until finally the pain was

just to much. I mentioned it to my primary care dr. and a flat film x-

ray revealed a dark shadow on the upper third of my humerus. I had a

subsequent bone scan which " lit up " in that same area. I had a bone

biopsy done just because it looked suspicious and because of all the

other illnesses I have. Thankfully, the biopsy showed it to be benign

but I have an 8 1/2 cm necrotic lesion...dead bone. " They " think it's

from my antiphospholipid syndrome, steroid use, and SLE. They say

they can do a surgery to fill the necrotic spot with a cement like

substance because now that arm could break easily. I opted not to

have any surgery. I will just treat the pain as it comes and we are

keeping an eye on it to be sure it doesn't spread. It was actually a

relief to hear that lupies sometimes get these necrotic areas. Once

again, I find that I am not alone. Thanks for all the necrotic

info.Hugs to all, Pam