Re: Hello, Im new to this site

February 22, 2004

-Welcome Simone, nice to meet you. You will find great comfort at

this site. We are not professionals, just folks getting by day to day

with Lupus. My name is Pam , I am 38 and live in New England. I do

understand what its like trying to get a man and any kind of self

help together in the same room!!! This really is a great site, not

just for info, but just if you need a place to b----!!! You and your

hubby are more than welcome and feel free to e-mail whenever you

like. Take care and God bless, Pam :-)-- In

LUPIES , " simonejones " <SimoneandDwight@h...> wrote:

> Hello my name is Simone , I live in Kentucky, my husband and I

> will probably both be utilizing this site, my situation is probably

> going to be different from alot of yours, My husband has Lupus, he

> was diagnosed about 4 years ago. He is currently on disability,

> (which was very hard to get). I need this support group to help me

> understand if I can what he is going through, He has his ups and

> downs both physically and emotionally and I would like to be a

> better support person if I could. You know how men are he thinks if

> he doesnt work his not a man. We have 3 beautiful daughters, Imani

> (12), Kiera(7) and Niyah(9mths), my husband takes care of the baby

> at home. I suggested he use this support system I hope he does, I

> know I will. His family is very understanding which is also

helpful.

> Well I guess that enough for now, thanks for listening and I'm sure

> I'll be posting more soon.

February 22, 2004

Hiya Simone ..

there is a lot of information on the web site I maintain for our group...

feel free to print out any of it ..

I also post information via emails quite often as does our fearless leader

Deanna..

also has a great deal of answers .. so ..

feel free to print them out and save them in a folder for your hubby to read..

and remember ..

there is no stupid question!

If you need to know something .. ask ..

somebody here will probably know the answer.

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