Re: an Update

[Guest guest]

I AGREE LAURIE, FIND IT RATHER SAD TO GET HOPES UP AND SOMEONE FEEL THE HOPE OF FINDING RELIEF IN WHATEVER IS SUGGESTED AND THEN IT NOT WORKING. YET AS YOU SAY HAVE TO GIVE EVERYONE THE KNOWLEDGE THAT WE JOINED THE DIGEST TO LEARN ABOUT IN FIRST PLACE. I GUESS IT IS WASTE OF MY ENERGY TO EVEN FIND THIS A PROBLEM BUT I KNOW FROM THE THINGS STRUGGLED WITH I HAVE BEEN SO PLEASED WITH THE SOLUTIONS GIVEN AND WOULD BE IN ALOT WORSE SHAPE HAD OTHERS ON THIS DIGEST NOT GIVEN ME ADVISE OF DIFFERENT THINGS TO TRY NO MATTER WHAT THEY WERE.

NOT SURE ABOUT OTHERS BUT SOMETIMES FIND MYSELF JUST THINKING ABOUT MANY THINGS AND THIS HAPPENED TO BE ONE FOR ME TODAY. I AM SURE WILL WONDER WHY THE HECK LET IT GET TO ME TODAY, BUT JUST WANTED TO THROW OUT THE THOUGHT TO FIND OUT IF I AM TOTALLY ALONE ON THIS THINKING.

TAKE CARE LAURIE AND GET FEELING BETTER RIGHT AWAY, OKAY?!!!! FIGURE IF TOLD YOUR BODY TO START BEHAVING IT WILL JUST CHOOSE TO DO SO AS IS A MUST DO. HUGS MY FRIEND AND MOMMA JO IS FINE.

JOANN

Re: an Update

Momma Jo,

Hope you don't mind the name. Just thought it fit for me at the moment. I to feel it's hard to tell someone to try some type of trmt. or drug knowing that it didn't work for me or the side effects where unreal. Hate to dash that persons hopes. But in the other hand ya never know is what I like to think.

Laurie

[Guest guest]

Joann,

I think we all find that one treatment may work for one and not another frustrating. One thing with RSD I have learned from the posts is that everyone is different and it affects everyone differently...and what works for 1 doesn't work for another. So don't worry about telling me that acupuncture didn't work for kelly...I will try it if my dr sends me and see if I get any relief..if I don't get any relief I will stop ..just another trial and error. i figure it's not going to harm me in any way...and if it helps great. Hope you are having a painfree night...Hugs.GinnyJoAnn & Russ Ford wrote:

Saw this as deleting emails and wanted to tell you that went for acupuncture within the first 8 months of being diagnosed with rsd. She tried many types of things to help but finally stopped the acupuncture as did not help but short time if at all. Of course does not mean won't help others greatly. I find it so hard to even respond sometimes to someone asking about a med or any treatment as always have to understand that what works for one does not work for other and kind of makes me feel like either getting someone up to try something or discouraging someone about even trying specific treatment.

Am I alone on this? Perhaps just find it frustrating to find something that helps and know may do nothing for other person or persons. Oh well, take care all. Hope each has had good day.

Hugs

JoAnn

s Momma

Re: an Update

Ginny,

I happen to agree with your Dr. I also agree that "alternative medicine" is a wonderful idea. I am very tempted to try acupuncture again myself. A lot of people have had very positive results.

My Drs. believe that my RSD is not as bad as it could/should be because of several things. The first is that I stopped smoking (seven years ago already!). The next is that I do try and stay as active as possible, including mentally. Everyone has their own limits, of course.

The next is that I have tried to take supplements and eat well. I take a plethera of things, some of the things that have been suggested included cherry extract, coral calcium, coromega oils, etc.

I usually suggest the website of my local health food store, as it's a wonderful site that gives a lot of suggestions for different ailments. RSD-CRPS is NOT specifically shown, but there are still numerous, including "chronic pain" conditions.

That site is www.EarthlightNaturalFoods.com

I received an email from Debbie/DJ the other day about alternative medicine and treatments, and would be happy to forward it (or ask her to if I've lost it) if you are interested.

Hope this helps some..

JO