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I sure hope you can get some answers. My sister recently got VERY

sick and the doctors couldn't work out what was going on , including

weight loss and tummy pains etc. It turned out she is a SEVERE Celiac

(I didn't know there were different severities, but she is not even

allowed to use the same crockery, cutlery or cookware that has had

gluten anywhere near it, she isn't allowed to injest ANY gluten at

all (at the moment) and they are having huge problems with this. She

can't even use the same foods that have been in contact with gluten

foods. Making her life a bit inconvenient at present as she has 5

kids and a hubby at home etc and I am guessing the WHOLE family will

have to go gluten free pretty much to make sure she doesn't contact

it (I am guessing she can't even make her kids lunches due to the

bread).

Her inlaws have been great (she lives near them) they are Italians

and have gone as far as buying a second set of pasta pots, spaghetti

and pasta machines etc and make her Gluten free pastas to eat and

take home and freeze (they make her's first in a kitchen they pretty

much have to sterilise and then after hers is made and put away etc

they make the " normal " pasta) she has been enjoying the variety as

they have been making all kinds from simple spaghettis etc to

raviolis and other filled pastas. They even bought a second set of

pots so they can cook hers in a pot that NEVER has gluten in it and

she has her own crockery and cutlery and glasses etc that must be

washed seperately and put away with clean hands to prevent cross

contamination.

I have NEVER heard of anyone this severe and her specialists are

hopign that it wont always be this drastic.

Good luck with your son and his appointment and here is hoping it is

nothing serious (I to have had Giardia and another waterborn

contamination that left me with IBS and at the time was SHOCKING).

Sharon

> BTW,

> I e-mailed all of 's teachers asking if they have noticed

anything that might be upsetting him at school.

> They were ALL surprised that I even asked. They all said that he's

quiet in class, and a bit shy.

> None of them have noticed anyone bothering or upsetting him.

>

> I'm very aware that kids get physical symptoms from anxiety. And,

I do think has a bit of anxiety, but after talking with his

teachers, and a long talk with him yesterday, I don't think that is

what is causing his problem.

> He's had tummy problem since he was 6, and now it is worse than

ever.

> He even pooped undigested food the other day. Now that is not

normal!

>

>

>

>

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wow. I've heard of people being allergic to things so severe that they have to

go to extreme measures. I saw a show on tv once about a woman who had such a

severe allergy, that nothing with whatever the allergy was, or that had been in

contact with it could even pass through their front door. Her hubby even had to

re-package all food products before they entered the house. I think it was

latex. she wouldn't even open the front door to anyone who she didn't know, and

who hadn't been de-contaminated.

When my parents were looking for a new home, we looked at one that was equipped

with some major air-cleaning device throughout the house. My dad said the guy

must have been majorly obsessive/compulsive about germs, but the realtor said it

was some sort of severe allergy. Everything in the house was built with special

stuff, like glues and special materials.

I know how difficult it is to have an allergy that makes normal living

impossible. Just knowing people who have nut allergies, and what they have to

go through seems like a nightmare to me. I've known of people who could die if

they eat just one peanut. A little boy in my daughter's pre-school club thing

was one. That little boy had been near death many times. He was only 4 when I

knew him.

I don't think we are gonna have to worry about anything that severe.

I hope your sister is handling her situation ok. Her in-laws sound like

wonderful people, to go to all that trouble for her. She's very lucky in that

regard.

So, what would you do if she came to your house? What about going on holiday?

Can she just not do that? No restaurants. No dinner parties.

Geeze.

It must be very stressful.

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wow. I've heard of people being allergic to things so severe that they have to

go to extreme measures. I saw a show on tv once about a woman who had such a

severe allergy, that nothing with whatever the allergy was, or that had been in

contact with it could even pass through their front door. Her hubby even had to

re-package all food products before they entered the house. I think it was

latex. she wouldn't even open the front door to anyone who she didn't know, and

who hadn't been de-contaminated.

When my parents were looking for a new home, we looked at one that was equipped

with some major air-cleaning device throughout the house. My dad said the guy

must have been majorly obsessive/compulsive about germs, but the realtor said it

was some sort of severe allergy. Everything in the house was built with special

stuff, like glues and special materials.

I know how difficult it is to have an allergy that makes normal living

impossible. Just knowing people who have nut allergies, and what they have to

go through seems like a nightmare to me. I've known of people who could die if

they eat just one peanut. A little boy in my daughter's pre-school club thing

was one. That little boy had been near death many times. He was only 4 when I

knew him.

I don't think we are gonna have to worry about anything that severe.

I hope your sister is handling her situation ok. Her in-laws sound like

wonderful people, to go to all that trouble for her. She's very lucky in that

regard.

So, what would you do if she came to your house? What about going on holiday?

Can she just not do that? No restaurants. No dinner parties.

Geeze.

It must be very stressful.

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when she goes away, she has to take her own set of crockery, cutlery,

cookware etc with her. she doesn't go out to restaurants because she

can't gaurantee that the food is " safe " . she has a shocking time

shopping (she was give a list by one of the celiac groups about foods

and labeling etc). she has to read ecery label everytime as sometimes

the companies change ingredients etc and she could get court out.

most of her food she has to make from scratch or get in from special

suppliers and it is EXPENSIVE....

if she was to come to visit i would make every effort i could and

even sterilise the kitchen for her and the fridge etc etc and look up

some recipes to cook for her so that she could have a break (if i was

up to it) or i would contact local groups to see if there was

any " safe " estaurants in the area and ring ahead and book to take her

out for a very rare dinner/night out.

the doctors are hoping that her sensitivity will deminish as they get

the gluten etc out of her system and her system has a chance to

recover then she MAY one day be able to tollerate a tiny bit (i.e.

like minor cross contamination etc) so then she minght be able to go

out etc and eat gluten free at restaurants....

Sharon

> wow. I've heard of people being allergic to things so severe that

they have to go to extreme measures. I saw a show on tv once about a

woman who had such a severe allergy, that nothing with whatever the

allergy was, or that had been in contact with it could even pass

through their front door. Her hubby even had to re-package all food

products before they entered the house. I think it was latex. she

wouldn't even open the front door to anyone who she didn't know, and

who hadn't been de-contaminated.

> When my parents were looking for a new home, we looked at one that

was equipped with some major air-cleaning device throughout the

house. My dad said the guy must have been majorly

obsessive/compulsive about germs, but the realtor said it was some

sort of severe allergy. Everything in the house was built with

special stuff, like glues and special materials.

>

> I know how difficult it is to have an allergy that makes normal

living impossible. Just knowing people who have nut allergies, and

what they have to go through seems like a nightmare to me. I've

known of people who could die if they eat just one peanut. A little

boy in my daughter's pre-school club thing was one. That little boy

had been near death many times. He was only 4 when I knew him.

>

> I don't think we are gonna have to worry about anything that severe.

>

> I hope your sister is handling her situation ok. Her in-laws sound

like wonderful people, to go to all that trouble for her. She's very

lucky in that regard.

> So, what would you do if she came to your house? What about going

on holiday? Can she just not do that? No restaurants. No dinner

parties.

> Geeze.

> It must be very stressful.

>

>

>

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when she goes away, she has to take her own set of crockery, cutlery,

cookware etc with her. she doesn't go out to restaurants because she

can't gaurantee that the food is " safe " . she has a shocking time

shopping (she was give a list by one of the celiac groups about foods

and labeling etc). she has to read ecery label everytime as sometimes

the companies change ingredients etc and she could get court out.

most of her food she has to make from scratch or get in from special

suppliers and it is EXPENSIVE....

if she was to come to visit i would make every effort i could and

even sterilise the kitchen for her and the fridge etc etc and look up

some recipes to cook for her so that she could have a break (if i was

up to it) or i would contact local groups to see if there was

any " safe " estaurants in the area and ring ahead and book to take her

out for a very rare dinner/night out.

the doctors are hoping that her sensitivity will deminish as they get

the gluten etc out of her system and her system has a chance to

recover then she MAY one day be able to tollerate a tiny bit (i.e.

like minor cross contamination etc) so then she minght be able to go

out etc and eat gluten free at restaurants....

Sharon

> wow. I've heard of people being allergic to things so severe that

they have to go to extreme measures. I saw a show on tv once about a

woman who had such a severe allergy, that nothing with whatever the

allergy was, or that had been in contact with it could even pass

through their front door. Her hubby even had to re-package all food

products before they entered the house. I think it was latex. she

wouldn't even open the front door to anyone who she didn't know, and

who hadn't been de-contaminated.

> When my parents were looking for a new home, we looked at one that

was equipped with some major air-cleaning device throughout the

house. My dad said the guy must have been majorly

obsessive/compulsive about germs, but the realtor said it was some

sort of severe allergy. Everything in the house was built with

special stuff, like glues and special materials.

>

> I know how difficult it is to have an allergy that makes normal

living impossible. Just knowing people who have nut allergies, and

what they have to go through seems like a nightmare to me. I've

known of people who could die if they eat just one peanut. A little

boy in my daughter's pre-school club thing was one. That little boy

had been near death many times. He was only 4 when I knew him.

>

> I don't think we are gonna have to worry about anything that severe.

>

> I hope your sister is handling her situation ok. Her in-laws sound

like wonderful people, to go to all that trouble for her. She's very

lucky in that regard.

> So, what would you do if she came to your house? What about going

on holiday? Can she just not do that? No restaurants. No dinner

parties.

> Geeze.

> It must be very stressful.

>

>

>

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