Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 Thanks! Gosh, Giardia. That's bad. Poor kid. I can't believe it took them that long to figure it out! But, thank god you did. Hugs, Mon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 I sure hope you can get some answers. My sister recently got VERY sick and the doctors couldn't work out what was going on , including weight loss and tummy pains etc. It turned out she is a SEVERE Celiac (I didn't know there were different severities, but she is not even allowed to use the same crockery, cutlery or cookware that has had gluten anywhere near it, she isn't allowed to injest ANY gluten at all (at the moment) and they are having huge problems with this. She can't even use the same foods that have been in contact with gluten foods. Making her life a bit inconvenient at present as she has 5 kids and a hubby at home etc and I am guessing the WHOLE family will have to go gluten free pretty much to make sure she doesn't contact it (I am guessing she can't even make her kids lunches due to the bread). Her inlaws have been great (she lives near them) they are Italians and have gone as far as buying a second set of pasta pots, spaghetti and pasta machines etc and make her Gluten free pastas to eat and take home and freeze (they make her's first in a kitchen they pretty much have to sterilise and then after hers is made and put away etc they make the " normal " pasta) she has been enjoying the variety as they have been making all kinds from simple spaghettis etc to raviolis and other filled pastas. They even bought a second set of pots so they can cook hers in a pot that NEVER has gluten in it and she has her own crockery and cutlery and glasses etc that must be washed seperately and put away with clean hands to prevent cross contamination. I have NEVER heard of anyone this severe and her specialists are hopign that it wont always be this drastic. Good luck with your son and his appointment and here is hoping it is nothing serious (I to have had Giardia and another waterborn contamination that left me with IBS and at the time was SHOCKING). Sharon > BTW, > I e-mailed all of 's teachers asking if they have noticed anything that might be upsetting him at school. > They were ALL surprised that I even asked. They all said that he's quiet in class, and a bit shy. > None of them have noticed anyone bothering or upsetting him. > > I'm very aware that kids get physical symptoms from anxiety. And, I do think has a bit of anxiety, but after talking with his teachers, and a long talk with him yesterday, I don't think that is what is causing his problem. > He's had tummy problem since he was 6, and now it is worse than ever. > He even pooped undigested food the other day. Now that is not normal! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 wow. I've heard of people being allergic to things so severe that they have to go to extreme measures. I saw a show on tv once about a woman who had such a severe allergy, that nothing with whatever the allergy was, or that had been in contact with it could even pass through their front door. Her hubby even had to re-package all food products before they entered the house. I think it was latex. she wouldn't even open the front door to anyone who she didn't know, and who hadn't been de-contaminated. When my parents were looking for a new home, we looked at one that was equipped with some major air-cleaning device throughout the house. My dad said the guy must have been majorly obsessive/compulsive about germs, but the realtor said it was some sort of severe allergy. Everything in the house was built with special stuff, like glues and special materials. I know how difficult it is to have an allergy that makes normal living impossible. Just knowing people who have nut allergies, and what they have to go through seems like a nightmare to me. I've known of people who could die if they eat just one peanut. A little boy in my daughter's pre-school club thing was one. That little boy had been near death many times. He was only 4 when I knew him. I don't think we are gonna have to worry about anything that severe. I hope your sister is handling her situation ok. Her in-laws sound like wonderful people, to go to all that trouble for her. She's very lucky in that regard. So, what would you do if she came to your house? What about going on holiday? Can she just not do that? No restaurants. No dinner parties. Geeze. It must be very stressful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 wow. I've heard of people being allergic to things so severe that they have to go to extreme measures. I saw a show on tv once about a woman who had such a severe allergy, that nothing with whatever the allergy was, or that had been in contact with it could even pass through their front door. Her hubby even had to re-package all food products before they entered the house. I think it was latex. she wouldn't even open the front door to anyone who she didn't know, and who hadn't been de-contaminated. When my parents were looking for a new home, we looked at one that was equipped with some major air-cleaning device throughout the house. My dad said the guy must have been majorly obsessive/compulsive about germs, but the realtor said it was some sort of severe allergy. Everything in the house was built with special stuff, like glues and special materials. I know how difficult it is to have an allergy that makes normal living impossible. Just knowing people who have nut allergies, and what they have to go through seems like a nightmare to me. I've known of people who could die if they eat just one peanut. A little boy in my daughter's pre-school club thing was one. That little boy had been near death many times. He was only 4 when I knew him. I don't think we are gonna have to worry about anything that severe. I hope your sister is handling her situation ok. Her in-laws sound like wonderful people, to go to all that trouble for her. She's very lucky in that regard. So, what would you do if she came to your house? What about going on holiday? Can she just not do that? No restaurants. No dinner parties. Geeze. It must be very stressful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 when she goes away, she has to take her own set of crockery, cutlery, cookware etc with her. she doesn't go out to restaurants because she can't gaurantee that the food is " safe " . she has a shocking time shopping (she was give a list by one of the celiac groups about foods and labeling etc). she has to read ecery label everytime as sometimes the companies change ingredients etc and she could get court out. most of her food she has to make from scratch or get in from special suppliers and it is EXPENSIVE.... if she was to come to visit i would make every effort i could and even sterilise the kitchen for her and the fridge etc etc and look up some recipes to cook for her so that she could have a break (if i was up to it) or i would contact local groups to see if there was any " safe " estaurants in the area and ring ahead and book to take her out for a very rare dinner/night out. the doctors are hoping that her sensitivity will deminish as they get the gluten etc out of her system and her system has a chance to recover then she MAY one day be able to tollerate a tiny bit (i.e. like minor cross contamination etc) so then she minght be able to go out etc and eat gluten free at restaurants.... Sharon > wow. I've heard of people being allergic to things so severe that they have to go to extreme measures. I saw a show on tv once about a woman who had such a severe allergy, that nothing with whatever the allergy was, or that had been in contact with it could even pass through their front door. Her hubby even had to re-package all food products before they entered the house. I think it was latex. she wouldn't even open the front door to anyone who she didn't know, and who hadn't been de-contaminated. > When my parents were looking for a new home, we looked at one that was equipped with some major air-cleaning device throughout the house. My dad said the guy must have been majorly obsessive/compulsive about germs, but the realtor said it was some sort of severe allergy. Everything in the house was built with special stuff, like glues and special materials. > > I know how difficult it is to have an allergy that makes normal living impossible. Just knowing people who have nut allergies, and what they have to go through seems like a nightmare to me. I've known of people who could die if they eat just one peanut. A little boy in my daughter's pre-school club thing was one. That little boy had been near death many times. He was only 4 when I knew him. > > I don't think we are gonna have to worry about anything that severe. > > I hope your sister is handling her situation ok. Her in-laws sound like wonderful people, to go to all that trouble for her. She's very lucky in that regard. > So, what would you do if she came to your house? What about going on holiday? Can she just not do that? No restaurants. No dinner parties. > Geeze. > It must be very stressful. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 when she goes away, she has to take her own set of crockery, cutlery, cookware etc with her. she doesn't go out to restaurants because she can't gaurantee that the food is " safe " . she has a shocking time shopping (she was give a list by one of the celiac groups about foods and labeling etc). she has to read ecery label everytime as sometimes the companies change ingredients etc and she could get court out. most of her food she has to make from scratch or get in from special suppliers and it is EXPENSIVE.... if she was to come to visit i would make every effort i could and even sterilise the kitchen for her and the fridge etc etc and look up some recipes to cook for her so that she could have a break (if i was up to it) or i would contact local groups to see if there was any " safe " estaurants in the area and ring ahead and book to take her out for a very rare dinner/night out. the doctors are hoping that her sensitivity will deminish as they get the gluten etc out of her system and her system has a chance to recover then she MAY one day be able to tollerate a tiny bit (i.e. like minor cross contamination etc) so then she minght be able to go out etc and eat gluten free at restaurants.... Sharon > wow. I've heard of people being allergic to things so severe that they have to go to extreme measures. I saw a show on tv once about a woman who had such a severe allergy, that nothing with whatever the allergy was, or that had been in contact with it could even pass through their front door. Her hubby even had to re-package all food products before they entered the house. I think it was latex. she wouldn't even open the front door to anyone who she didn't know, and who hadn't been de-contaminated. > When my parents were looking for a new home, we looked at one that was equipped with some major air-cleaning device throughout the house. My dad said the guy must have been majorly obsessive/compulsive about germs, but the realtor said it was some sort of severe allergy. Everything in the house was built with special stuff, like glues and special materials. > > I know how difficult it is to have an allergy that makes normal living impossible. Just knowing people who have nut allergies, and what they have to go through seems like a nightmare to me. I've known of people who could die if they eat just one peanut. A little boy in my daughter's pre-school club thing was one. That little boy had been near death many times. He was only 4 when I knew him. > > I don't think we are gonna have to worry about anything that severe. > > I hope your sister is handling her situation ok. Her in-laws sound like wonderful people, to go to all that trouble for her. She's very lucky in that regard. > So, what would you do if she came to your house? What about going on holiday? Can she just not do that? No restaurants. No dinner parties. > Geeze. > It must be very stressful. > > > Quote Link to comment Share on other sites More sharing options...
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