Re: Re: HELPSCARED BAD NEWS CIRCU

[Guest guest]

HI HELEN,

THANK YOU SOOOOOOO MUCH FOR WRITTING BACK. YES I TO HAVE BOTH LEGS TURNED RED ANND SWOLLEN WHEN I FIRST GOT THE RSD SYMTOMS THEN NOW THEY ARE FROM THE KNEES DOWN PURPLE AND DUSKY ALSO. IAM AWARE OF THAT. IT ALSO HAPENED TO MY LEFT ARM NOW IT ISNT AS BAD AS MY LEGS BUT IT TO IS THAT MODDLED DUSKY LOOKING. IT TOOK THEM TOO LONG TO DIAGNOSE ME. WAS IN 1992 AFTER WHAT WE ALL KNOW MANY NUMEROUSE TESTS AND THEN AFTER ABOUT 6 MO. THEY FINALLY CONFERMED IT WITH FOUR DOCS. MINE WENT FROM STAGE 1 TO STAGE FOUR IN 6 MONTHS. IT WAS BROUGHT ON AFTER 7 BACK SURGERIES AND AFTER THE CERVICAL ONE IN MY NECK IT STARTED. THE CIRCULATION PROBLEM IS AN ADD ON I GUESS ALTHOUGH HE SAID IT TO CAN GO WITH RSD.? BUT YES THE PAIN IS HORRIBLE. FROM RSD NOW THIS PROBLEM. I WILL TAKE YOUR ADVICE AND SEEK AN VASCULAR DOC OUT AND GET A SECOND OPINION.. HE DID SAY IF IT ADVANCES IT COULD GO INTO GANGERINE IF NOT TAKEN CARE OF. WHATS THERE TO DO. DRESS WARM {I ROAST ANYWAY} THIS WILL BE FUN. LOL LOL BUT IAM SCARED RIGHT NOW I DONT HAVE ANY OPEN SORES BUT I GET CELLULITIS QUITE OFTEN IN THAT LEG. I DO HAVE NEROPATHY AS MOST OF US DO.SO THE FEELING IS DEMINISHED.. BUT THE PAIN IS STILL THERE. AS FAR AS THE PUMP YOU HAVE IN SOUNDS LIKE A MORPHINE PUMP NOT A SPINAL CORD STIMULATER. THE SCS I HAD IN FOR AWHILE AND HAD IT REMOVED IT DIDNT HELP. BUT THEY WANT TO PUT IN A MORPINE PUMP. THEY SAID THERES NOT MUCH ELES THEY CAN DO FOR THE PAIN AS IAM ON ALOT OF NARCOTICS. DILAUDID, MS CONITIN AND 100MCG AND A 25MCG. DURAGESIC PATCH. THE MEDS ARE P.O. HOW DOES THE PUMP WORK FOR YOU? DO U GET MUCH RELIEF? AND DONT U HAVE TO GO ABOUT EVERY 4-6 WEEKS TO GET IT FILLLED?? IF YOU HAVE TIME PLEASE LMK MORE ABOUT IT. YES I MUST NOT EVER GO SO LONG TO POST AND IT WILL NOT HAPPEN AGAIN. I THANK-YOU FOR YOUR CONCERNS AND TAKING THE TIME TO WRITE ME. HAVE A PAIN FREE DAY. DEBI