Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 Hi all.. I thought I'd take a minute or two of your time to update you with my results at Cleveland and where I stand. Everything is in and the labs showed low creatine, high carnitine in the urine and a great many low amino acids. Dr Cohen feels that this is idicative of the " stage of the disease " and has had me start Carnitor again. I started two days ago, and I can honestly say that this time, my system is not rejecting it. Instead, I am feeling somewhat better and even a little stronger. I started on 990 mg a day which I'm sure he will eventually increase, but aside from being beyond the surgery and having some healing time, my overall health does seem somewhat improved. He did say that my test results substantiated the low muscle mass and recommended very light exercise. I am hoping to get into a light exercise program thru my health insurance which is done in a pool. They put people in the pool in wheelchairs and it's supposed to be a great program. Since my health insurance will cover it, it does sound good right now even though I will be totally deaf in the pool because I can't wear the processors in the water. On Monday, 4/12, we will activate my new implant. I am more nervous about this activation than any of the others because this is a do or die situation for me. It just has to work. Alice Quote Link to comment Share on other sites More sharing options...
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