Thanks to Alice! Also, about Fudgie, the two Stellas; Along Mito Road

[Guest guest]

Thanks, Alice!

Please give Stella a hug from me.

One of our Afghan Hounds is named Fudgie; he is very large (too large

for an Afghan), and he looks like a Newfie, and has the personality of a

Buddha. He spends much time in deep thought, with his chin on the

windowsill, quietly looking out. I told me husband today that I think

he's trying to figure out the difference between algorithims and

logarithims....Fudgie came from Brooklyn, and he had a beautiful sister

named Stella.

Fudgie is mito-related, you could say. In 1998 the docs put me through a

bout of chemotherapy, hoping that my accelerating hearing loss was from

vasculitis and autoimmune in origin. Of course, it didn't work, and

that's when my endo said that I might have mito. I rewarded myself after

the chemo with a puppy, Fudgie. So, Fudgie is sort of a mito milestone.

To those still on the long and twisted road to a diagnosis, don't give

up hope. Answers will start to unfold, though much too slowly, I know.

It was Alice who found me out in cyberspace, looking for answers, I

think on the Massachusetts General neuromuscular disorders chatroom.

That's when she invited me to join Mitoldies, around June of 1998. (My

endo also told me to go to the UMDF and NORD

). If I remember correctly, Mitoldies only had 40 members in

1998. Alice is a giant in this field and in the various deafness areas.

I have never met you face-to-face, Alice, but I know that I know you.

You are an incredibly giving person, and have helped far more people

that anyone but God knows. Truly.

Thank you so much for your tremendous assistance, and for your

ever-present friendship, Alice.

Will you be in Pittsburgh at the UMDF conference this summer?

I just want all here to know, especially the newbies, that Mitoldies is

a port in the storm that is mito. Much because of Alice.

I also want to thank Laurie and , who constantly rise to the

occasion and will always answer any and every query, even during this

very painful time right after they have just lost their Mother.

Very sincerely yours,

Pennsylvania

[Guest guest]

You are welcome. This is also our port in the storm.

laurie

> From: BDS31@...

> Reply-To:

> Date: Fri, 2 Apr 2004 20:33:24 -0500 (EST)

> To:

> Subject: Thanks to Alice! Also, about Fudgie, the two Stellas; Along

> Mito Road

>

> Thanks, Alice!

> Please give Stella a hug from me.

> One of our Afghan Hounds is named Fudgie; he is very large (too large

> for an Afghan), and he looks like a Newfie, and has the personality of a

> Buddha. He spends much time in deep thought, with his chin on the

> windowsill, quietly looking out. I told me husband today that I think

> he's trying to figure out the difference between algorithims and

> logarithims....Fudgie came from Brooklyn, and he had a beautiful sister

> named Stella.

>

> Fudgie is mito-related, you could say. In 1998 the docs put me through a

> bout of chemotherapy, hoping that my accelerating hearing loss was from

> vasculitis and autoimmune in origin. Of course, it didn't work, and

> that's when my endo said that I might have mito. I rewarded myself after

> the chemo with a puppy, Fudgie. So, Fudgie is sort of a mito milestone.

>

> To those still on the long and twisted road to a diagnosis, don't give

> up hope. Answers will start to unfold, though much too slowly, I know.

> It was Alice who found me out in cyberspace, looking for answers, I

> think on the Massachusetts General neuromuscular disorders chatroom.

> That's when she invited me to join Mitoldies, around June of 1998. (My

> endo also told me to go to the UMDF and NORD

Disorders>). If I remember correctly, Mitoldies only had 40 members in

> 1998. Alice is a giant in this field and in the various deafness areas.

> I have never met you face-to-face, Alice, but I know that I know you.

> You are an incredibly giving person, and have helped far more people

> that anyone but God knows. Truly.

> Thank you so much for your tremendous assistance, and for your

> ever-present friendship, Alice.

> Will you be in Pittsburgh at the UMDF conference this summer?

> I just want all here to know, especially the newbies, that Mitoldies is

> a port in the storm that is mito. Much because of Alice.

>

> I also want to thank Laurie and , who constantly rise to the

> occasion and will always answer any and every query, even during this

> very painful time right after they have just lost their Mother.

> Very sincerely yours,

>

> Pennsylvania

>

>

>

>

[Guest guest]

Laurie,

You are more than welcome, shipmate!

[Guest guest]

,

Thank you. Everyone is a big part of this wonderful group. We all

bring something unique and heartfelt to the list and I am so very glad

to know you all!

BDS31@... wrote:

>Thanks, Alice!

>Please give Stella a hug from me.

>One of our Afghan Hounds is named Fudgie; he is very large (too large

>for an Afghan), and he looks like a Newfie, and has the personality of a

>Buddha. He spends much time in deep thought, with his chin on the

>windowsill, quietly looking out. I told me husband today that I think

>he's trying to figure out the difference between algorithims and

>logarithims....Fudgie came from Brooklyn, and he had a beautiful sister

>named Stella.

>

>Fudgie is mito-related, you could say. In 1998 the docs put me through a

>bout of chemotherapy, hoping that my accelerating hearing loss was from

>vasculitis and autoimmune in origin. Of course, it didn't work, and

>that's when my endo said that I might have mito. I rewarded myself after

>the chemo with a puppy, Fudgie. So, Fudgie is sort of a mito milestone.

>

>To those still on the long and twisted road to a diagnosis, don't give

>up hope. Answers will start to unfold, though much too slowly, I know.

>It was Alice who found me out in cyberspace, looking for answers, I

>think on the Massachusetts General neuromuscular disorders chatroom.

>That's when she invited me to join Mitoldies, around June of 1998. (My

>endo also told me to go to the UMDF and NORD

Disorders>). If I remember correctly, Mitoldies only had 40 members in

>1998. Alice is a giant in this field and in the various deafness areas.

>I have never met you face-to-face, Alice, but I know that I know you.

>You are an incredibly giving person, and have helped far more people

>that anyone but God knows. Truly.

>Thank you so much for your tremendous assistance, and for your

>ever-present friendship, Alice.

>Will you be in Pittsburgh at the UMDF conference this summer?

>I just want all here to know, especially the newbies, that Mitoldies is

>a port in the storm that is mito. Much because of Alice.

>

>I also want to thank Laurie and , who constantly rise to the

>occasion and will always answer any and every query, even during this

>very painful time right after they have just lost their Mother.

>Very sincerely yours,

>

>Pennsylvania

>

>

>

>