Re: Re: Re: memory disorder

[Guest guest]

yes, I too can say it actually " hurts " sometimes to think. Sounds crazy, but

true.

I am still away right now and am not using my regular computer but my laptop,

which is not so easy for me, so I will write more when I get back home after

tomorrow.

Smiles,

>

> From: z39z@...

> Date: 2004/03/22 Mon PM 10:41:54 EST

> To:

> Subject: Re: Re: memory disorder

>

> Thanks for sharing your experiences about brain/memory function.

>

> It was good to hear others describe the memory/concentration problems

> similar to mine. Especially not being able to understand conversation

> if there is a distraction. If two people are talking to me at the same

> time, it can be very difficult, almost painful to endure, and I can't

> process either one. Drives me wild. I always thought it was that I had

> sensitive hearing. Also, the multitasking think is tough. I can do a

> lot of things well, but one at a time, please. I sometimes need a

> second or two to find a word, but usually it is not worse than that. I

> loved the comment about being able to remember that/what you could not

> remember. So true. Names have always been a problem for me, ever since

> I can remember (lol)....at least 50 years. With the exception of the

> name thing, which is pretty constant, I find my mental function is

> very unpredictable. Some hours/days I do great. Other times I know I

> am low, and just try not to put myself in a position where I will be

> taxed. But, I always know if I am clicking or not. I always remember

> that I did not know what I should have. And frequently, later, I can

> remember it again. (Except for names - always been really really hard

> for me). I guess different parts of the brain are involved. I think

> the QGel is helping this brain problem somewhat. Also, recently I

> drink a cup of coffee when I am low on mental energy, and to my

> surprise, that seems to make me sharper mentally sometimes. I use

> coffee like a drug, never too much, only when I need it. I have had

> these problems for many years, and while it is trying, I can still go

> out an do my stuff most days. (Have to bluff and cover up sometimes,

> but not to bad) The bad times seem a little worse now, but not that

> much. I am optimistic that it may not get worse.

>

> One more thing. For me, restricting my carbs seems to help my mental

> function. My mind gets really tired/cloudy after I eat bread, for

> example. I have tried eating the low glycemic carbs, but I definitely

> feel better when I dont eat many carbs at all. I KNOW it is not what

> the mito docs recommend. I discovered this before I was diagnosed, and

> do not understand how this fits into the mito theory. Maybe my

> metabolic glitch is in the carb conversion chain. I dont know, but

> more protein seems to agree with me. So much to learn, to try to

> manage and optimize our condition.

>

>

> It is good to hear from others who are experiencing similar things.

>

> Sunny

>

>

> That is very interesting that you are experiencing similar things.  I

> can't say as that I feel like I am in a brain fog though. I don't seem

> to have problems with the kind of forgetfulness tht lots of people

> complain of. I am having problems following stories,for one thing. 

> Like during the test they told me a 3 or 4 sentence story and I was

> suppose to repeat back the details of it, and I could barely tell any

> of it.  That is very typical of what I am experiencing.  If I am in a

> group of people and one is talking I can't seem to understand what they

> are talking about if there is any distraction at all.  I also got lost

> going to my hairdresser' 2 months in a row, couldn't remember what

> street to turn on. But yet the 2nd month I remembered that I had the

> same problem the month before!???  That incident was what made my

> doctor send me to the clinic to be tested.

> > Scary.

> >

> > Smiles,

> >

> > >

> > >

> > > Date: 2004/03/22 Mon PM 03:33:38 EST

> > > To:

> > > Subject: Re: memory disorder

> > >

> > > I am going through a similar thing, .  I had my first clear

> > > day in months on Friday - big difference.  One thing was that I had

> > > my lactate, pyruvate, CK and ammonia checked, and my ammonia was

> > > high.  I understand that can cause brain fog.

> > >

> > > It is funny (I have a sick sense of humor) to be able to function

> > > relatively well, but have very poor short-term memory.  I went to a

> > > neuro-psychologist and they found that there were deficits for me -

> > I

> > > have a high IQ too, but they could see that there were

> > > inconsistencies in the results that showed memory loss and

> > > impairment.  Also had an absence seizure in front of the psych tech,

> > > that was funny too.  I can learn new things, do my work, but simple

> > > things like remembering my kids' names or what I was doing are a

> > > problem.

> > >

> > > I am waiting for Dr. P from the town MDA clinic or a nurse to

> > > call back about the high ammonia, unfortunately I couldn't go to my

> > > MDA clinic appointment last week because I forgot to get a

> > referral. 

> > > A shame because my youngest son was supposed to go too...

> > >

> > > I sure wish I could figure out why I had that one good day

> > >

> > > Take care,

> > > RH

> > >

> > >

> > >

> > > >

> > > >

> > > > My mom's deficits were scattered. Her biggest problem was with

> > word

> > > finding

> > > > and it was made worse with fatigue, too much physical activity or

> > > stress. I

> > > > have the same word finding problems under these conditions. She

> > > also had

> > > > trouble with memory, especially new learning. She didn't have any

> > > great

> > > > increase once on the supplements until the past few months,

> > > especially after

> > > > some nutritional issues.

> > > >

> > > > Hugs,

> > > > laurie

> > > >

> > > > > From: " Young "

> > > > > Reply-To:

> > > > > Date: Fri, 19 Mar 2004 17:55:54 -0500

> > > > > To: >

> > > > > Subject: Re: memory disorder

> > > > >

> > > > > Hi Laurie,

> > > > >

> > > > > Did your mom complain of not being able to process thoughts and

> > > not

> > > > > remember?  Only certain areas are effected they said, and it is

> > > patchy, not

> > > > > hemispherical or focal. Many of my testing areas still showed

> > > higher than

> > > > > average.

> > > > > This is really concerning me.  I wonder if they will end up

> > doing

> > > an MRI on

> > > > > me?

> > > > >

> > > > > Smiles,

> > > > >

> > > > >

> > > > >

> > > > > memory disorder

> > > > >>>

> > > > >>> I have just been diagnosed after much official testing at a

> > > memory

> > > > > disorder

> > > > >>> clinic to have mild to moderate cognitive deficits.  It does

> > > not fit the

> > > > >>> Alzheimer or dementia profile at all at this time. But there

> > is

> > > most

> > > > > certainly

> > > > >>> something wrong. Not the usual age related forgetfulness. Does

> > > anyone

> > > > > else

> > > > >>> have a " confirmed " memory disorder like this?  I can not

> > think.

> > > learn

> > > > > easily.

> > > > >>> concentrate or multitask.  My IQ is very  high they said. so

> > it

> > > makes it

> > > > > hard

> > > > >>> to establish just how much I have lost.  But this test will

> > > give us a

> > > > > base

> > > > >>> line.  I have to have more done in 8 months.  Would appreciate

> > > any

> > > > > comments

> > > > >>> from folks that have been officially diagnosed like this.

> > > > >>>

> > > > >>> Smiles,

> > > > >>>

> > > > >>>

> > > > >>

> > > > >>

> > > > >>

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