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Tue, 16 Mar 2004 21:53:20 -0700

From:

Jeanne -Ferris jkferris@...>

To:

jkferris@...

GPDA quick news release:

The FDA Petition was pulled today from our site and amended to match the

request from the FDA regulation's office. The amendment is minor and does

not change the content of the original petition.

A docket number is now available and on the web site. People may use this

number when corresponding with the FDA.

This document also will be used as a position paper and information

document and will be mailed out to large insurance providers in various

states in order to try and have them fall in -line with the practices of

Medicare.

Further, GPDA has identified a National non-profit in the US which helps

patients fight insurance appeals, disability claims, and they can assist

with enteral/parenteral nutrition coverage issues. This information can be

found on the same page as the Petition. I have spoken with this group and

sent them information about Digestive Motility diseases and Gastroparesis

All of this action will have a spill over effect into Canada. As barriers

are brought down, it helps to ease access for all. We will continue to try

and identify GI specialists in Canada who are willing to get involved in

helping to further our actions.

The President's report for 2003 is also on our site.

GPDA will be in Bethesda April 2 presenting with a scientific team to a

trans institute committee at the NIH.

Thank you

Jeanne

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