Re: Lupron and malpractice and doctors/

[Guest guest]

I am against Lupron when it is used as it was

in my case at 2 times the usual dose and to control

bleeding and failing so I needed Megace too because

the Doc did not check the MRI before surgery so he

left in a tumor that was there and which he also had a

picture of(during a D and C with a hystergraphy) and

was over 5 cm so I had to have a second surgery. But

then again I could forget that I had a second myo with

a path report that said there was NO adenomyoma, No

adenomyosis and that it was a large degenerated

fibroid which was causing the muscle tissue nearby to

be damaged (it was mushy). But there was no reason

that I should expect my Doctor not to practice on me.

I'll tell you what find me another woman here who

wants to do this. So excuse me for being angry. And

excuse me for thinking him neglegent and that this

situation has been a total cluster f*** on many days.

You are right that many of us have had bad to

disasterous medical care (including you) but that

doesn't mean we should accept it.

I have had a friends tell me it was my fault for

wanting to keep my uterus. After all if I had had the

hysterectomy then none of this would have been a

problem (yes people have said this). It is great you

don't think you will miss your uterus. Congrats but I

was 33 when this started and I STILL want a family!

So to sum it up yes I am angry. Yes I want to

sue the idiot. And yes I think he was wrong and

should pay for the second myo, the extra lupron, the

missed work and no I don't think I am wrong.

PS if you have only been on Lupron for a week it

hasn't really begun working yet it takes about two

weeks to really see the result...got to love the

placebo effect

e

[Guest guest]

Hi ,

I'm sorry you went thru the ER experience. I haven't had to deal

witht that thank heavens. The closest I came to that was one morning

when I couldn't pee for a couple of hours. I'm sorry you feel

convinced that Hysterectomy is your only option to a better quality

of life. Not because it's hysterectomy, but because I feel everyone

deserves to have more than one option to choose from. I haven't read

the book you mentioned, but I did go to amazon.com and look at the

reviews. The book was written by two women who had hysterectomy and

wanted to help other women through the procedure. Do they actually

tell you hysterectomy is the best thing to do? I'm a bit confused

here as the book is from 1995 and not sure myo or UFE was an option

for them back then. And I'm sorry, but I haven't heard all kinds of

good things about hysterectomy so I can't say the good in it good as

you suggested. Maybe you can clue us in. Why is hysterectomy a

better choice than myomectomy or uterine fibroid embolization?

Gerri

> Alles...

>

> Some don't have to defend their rights to have children or not but

I think

> that some feel they have to with some of the things that have been

said. It

> is each woman's choice as to what she wants done with her body and

only she

> can best make those choices. We all can only offer up support, our

own

> personal stories and what we have felt or done.

>

> There is a risk in EVERYTHING you do regardless of it if it is a

> hysterectomy or a myomectomy. I have HEAVY bleeding, month after

month and

> as I said, two weeks ago I was bleeding to the point I didn't know

what do

> to and could of bled out or had an emergency hysterectomy. Thank

goodness it

> was stopped and I can now do my own research on what my choices

are. My

> hysterectomy IS necessary if I want a better quality of life.

>

> And the myomectomy's, the other surgeries to take out the

fibroids, other

> woman on this group have admitted that the fibroids come back,

surgery is

> necessary again, a 2nd or even at times a 3rd time. Why do we put

ourselves

> through this over and over? I personally could not do this to

myself. Course

> I hate being put under and it scares the pants off of me. I can

give you

> statistics of how many woman have had to go back for another

surgery again.

>

> 's reply was very well written and I applaude her. But

instead of

> only saying the risks involved with a hyterectomy why not say the

good in it

> too? Because there is. We are all intelligent woman, able to make

concise

> decisions. I encourage you to buy and read the book " The Woman's

Guide to

> Hysterectomy: Expectations and Options " . It talks about everything

we

> discuss on this forum and more and is written by woman who have

gone through

> what we are and have done.

>

>

[Guest guest]

,

I agree completely with Gerri.

I reviewed your past messages and

there is no mention of when you

were diagnosed with fibroids, how

you were diagnosed, ie pelvic exam,

ultrasound/transvaginal ultrasound,

MRI, CAT scan, etc. What type,

how many, location.

Intracavitary prolapsing submucosal fibroids can

present with heavy bleeding. You

mention you have passed pieces?

Your gynecologist, in proposing

a LEEP procedure was advising a

first line conservative therapy,

that would view the intracavitary

endometrial lining, remove potential

prolapsing submucosal fibroidal tissue--

what if that is all you needed

in this situation?

You mentioned that you had a D/C

last April 2003. What were the results?

Was that a hysteroscopic D/C?

, this is not meant to put

you on the defense---at all. Your

scheduled surgery, is elective...

you can cancel it or go with it.

But sometimes, we can get caught up

emotionally and psychologically with

symptoms and hyper focus on a treatment option

that may not be necessary.

I myself cancelled a myomectomy in late 03

after an ARNP who performed a pelvic exam

said, why are you scheduling this surgery?

Your gynecologist does not want to have

to explain an unnecessary hysterectomy

to you, the patient, to the hospital

Medical Executive Board, or to any attorney

you might seek if your results turn out

less than satisfactory, ie post-operative

complications; loss of ovarian function/

endocrine problems--do you know how many

women out there struggle to balance their

hormones, post-hysterectomy? long-term

osteoporosis, cardiovascular problems,

ad nauseum.

your so young, please think about

this...don't ever be ashamed to cancel

a surgery, to re-think your situation.

I postponed a myomectomy....if I ever need it

or a malignant condition requiring hysterectomy,

I can do it. I'm now menopausal, age 51...damage control

will be much easier. It's a heck of a thing

to go through menopausal symptoms at this age.

To go into surgi-menopause at your age with

another couple of decades ahead of you...

Whatever you do decide, there are support groups

that can help-NHRT-HRT groups for hysterectomized

women that are experiencing acute surgi-menopausal

symptoms is very helpful, Sans-Uteri for very

bad hysterectomy outcomes, and Hystersisters.

Please re-think your situation, hysterectomy

is the most radical treatment option, and

an elective surgery.

Marsha

UFE 1999,

8cm fundal fibroid

> I think that some feel they have to with some of the things that

have been said. It is each woman's choice as to what she wants done

with her body and only she can best make those choices.