Re: Re: Lupron and malpractice and doctors/to all

[Guest guest]

To all,

I get the impression some people felt I cared if

someone else has a hysterectomy and if that is WHAT

THEY WANT I could care less. If that is your thing

and you understand the consequences and have a good

doctor then that is fine. For Catholic woman it is an

" approved " reason and method of birth control. But if

you are young and want kids and are not given options

then I get upset.

But this was never my problem with the situation. I

have a problem with being put through two surgeries

for stupidity sake. I did review my Doctor's choice

before I let him operate. This guy, my first RE, had

won awards for his great job. He had nothing against

him I could find. I aim to change this so other women

know.

I have not put all I found here due to my concern that

it might be used against me later but maybe I should

be clear

1)the Lupron exceeded the FDA regs and is being

investigated (TAP has been accused of kickbacks and

has already paid fines for being convicted of this)

2) My incision was in the wrong place

3) My incision to take out a 2cm tumor was ~9in or

18cm

4) I had adhesions so extensive and thick that they

had bound my uterus to my bladder. They had to be

peeled apart.

5) The RE left behind a tumor that we had a photo of

inside the uterus, and MRI of all before surgery and

removed a tumor inside the muscles (this one wasn't in

the uterine cavity) instead of the large one in the

uterus.

6) Before the surgery there was no mention of

adenomyosis to me. It was on an early sonogram but

never discussed with me. After it was given as the

reason the the area was not removed. (I had no

adenomyosis)

7) My anemia was not treated aggressively at times

until I insisted...the " wait and see method " prevailed

until I passed out at times

8) Following the first myo when I confronted his

office about test report (it read fibroid still

present)that I got on my own and which they did not

notify me of the resultsof. they told me instead:

a) the test was not read in enough detail it needs

to be reread

It was not done right and may need to be redone

c) and my favorite He wanted " an endometrial

spiral done " and it needs to be read for this (this

one is a total load of bull but it took a couple of

days to figure out what it was and that it isn't a

test and I was outright lied to)...(by this time I had

the test)

and when I called and said I had the test and didn't

someone needto talk to me... the nurse said " yes it

SAID tumor but you need to dicuss it with the doctor "

then set up an appointment a month away, cancelled the

appointment, set another one up and two months later

he told me " it is about trust. Who do you trust (the

test results)...or do you trust the person who held

your uterus in his hand "

Then he said that we would ontinue the Lupron and

Megase and try adding estrogen to see if I could be

convinced to have a period and we would reexamine this

in Jan. This was Nov in Dec he left the practice. So

this RE would have left me with no help capable of

removing a tumor and in Jan I would have been looking

for a new RE anyway. (I went to the new RE at the end

of Oct but went to the first RE to get records and

other info per some sage advice)

Thank god I trusted the good advice I got here to get

all my results, to reask questions and get answers,

thank god that the people here had answers that kept

me savy enough to realise when I was in trouble, and

that people here echoed the voice in my own head that

said get a new Doctor.

But as I said going through all this was not right.

This is not decent treatment and I want better for

other women... I have nieces ladies and I have friends

with this on the wait and see method and I will never

allow this to happen to them. I want each person here

and for those who have no voice to have more. So I

will continue my routine of writing to Oprah, the news

groups, the pad and tampon makers, and spaming

assorted boards with facts. And I will get the state

of Indiana medical board or the state attorney's

office to let me place a warning on the doctors file.